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Once Again

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Well, I went to hook Clayton up to his pump and I vented him and once again

blood came out - lots of brown junk (soaked his pj bottoms) and some read

stuff We will be going to the ped tomorrow morning. He has been uncomfortable

again since Sunday and today was very cranky, He screams when we go to hook

him up and give him his meds. Like it hurts him with stuff going in his tube.

Also I think he is running a low grade fever. This is not the way I want him

to spend his b-day. I hope it is not a long night as Barry is away and wont

be home until tomorrow afternoon.

UGH.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sleep problems, sensory integration disorder and now tremors and suspected

metabolic disorder or genetic disorder, WHEN WILL THIS END)

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