Re: Fwd: Denver CJD case and Ladies Home Journal

[Guest guest]

Gloria,

The wrtier in Colorado said she was interested in people from all over

contacting her so it appears to me it is fine you contacted her. I also have

been in communication with her also through e-mail. I don't blame you for

being frustrated with the LA Times. Have you tried magazines such as the

Ladies Home Journal. I tried last summer and didn't get anywhere but the more

people write the better. The address is lhj@... (Ladies Home Journal). I

had originally written because they had published the following in LHJ which

people misinterpreted as saying there are no cases of CJD in the US.

" The reference to Creutzfeldt-Jakob is

found in our July 1998 issue in an article entitled " Germ Alert. "

There is only a brief reference to this disease in the article. In a

section asking " How many new diseases are there? " the answer is as

follows:

A few diseases are truly new to humans. AIDS is the most visible.

Scientists suspect that one form of Creutzfeldt-Jakob, an incurable

brain disease, is also new. More than twenty cases have been

diagnosed so far, all in Europe, that somehow may be related to mad

cow cisease. We're getting more evidence of the connection, but it

hasn't been definitely proven.

Then the answer continues with two other paragraphs, but not further

mention of Creutzfeldt-Jakob. I hope this information is of help. "

As you can tell LHJ didn't say that but apparently it was confusing enough for

people to misintrept it. I tried to use the people misinterpreting as a way

to get them to do an artilcle and have not succeeded yet. However, I will try

again now since perservance sometimes pays off. I encourage everyone to write.

The more people write the better.

Debbie

I

<< From: GlowUSA@...

After reviewing a video tape of my husband and Dr. Cummings, I did contact

the writer in Denver. I hope I did not overstep any of you. I mainly told

her how it was for Saul and I, some of the hallucinations he had, and how I

thought I was all alone and in a forign land with all of daily, hour and

minutes of his dementia. I told her what and how he contacted cjd, how

frightening it was.

I found her easy to speak with and asked her to send me a copy of what she

writes.

I am frustrated with the L.A. times and their egos here. No writer here

wants

to bother!

Gloria

>>

[Guest guest]

Also thinking if the reporter comes through with this article, I could send it

in everywhere and maybe some one will hear!

Gloria