Guest guest Posted November 30, 1998 Report Share Posted November 30, 1998 Hi AGAIN! I was told to post the entire message re: Tom Pringles NEWS, as some do not have access to internet. So here it is: CJD Watch goes operational Contact CJD Watch or visit Web site: 30 Nov 98 http://members.aol.com/stacy91434/watch/watch.htm CJD Watch -- a Public Awareness Project. Are there really only 250 cases per year of CJD in the US? A lot of people doubt this. Now families affected by CJD have begun collecting their own data and posting it on the Web. Individual coordinators for each state collect case reports in newspapers and contact affected families to gather statistics about the age of the victim, duration of illness, occupation, age at death, state of residence, how diagnosis was made and so on. These are assembled by the national coordinator, Barbara Mathews. CJD Watch accepts international cases as well. Quote Link to comment Share on other sites More sharing options...
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