Re: blood results

December 23, 1999

Hi this Tina mom to Alyssa and I just wanted to ask have you tried a

elemental formula? Alyssa was on steroids for 10 months and then they took

her off and put the g-tube in and she still had problems so they put on

steroids again and changed 3 times since having the tube we have found a

formula that is working for her. neocate infant formula she is too old for

that but it is working so I can't complain. She is hooked up 24 hrs aday but

finally she is getting enough calories, and for the first time in 6 months

she is acting like anormal child.I would suggest that you talk to her dr

about taking her off the steroids and trying a formula or if she is on one

try another one. I hope this helps some. We have been in the same boat. if

I can help you anyother way let me know. Tina

December 23, 1999

Can't read this one either? Is it only me?

Re: [eosinophilic gastroenteritis] blood results

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December 23, 1999

I just sent you AJ's allergy appt update today with the new doc. He was 100%

against steroids especially since AJ will drink the Neocate and can live on the

Neocate and be the happiest on the Neocate. He said it masks too many things.

We have been dealing with allergy issues too. Is Miriam or Yisroel allergic to

any of the foods? He suggested that by using an antihistimine-Benadryl-around

the clock, it would mask the allergy symptoms and allow her to eat, but not mask

the EG of course. He was against that too. I feel better because I feel like

this doc is on my side, he knows of Dr. Sampson, believes the diagnosis, but I

don't know if we accomplished anything. We are back at square one-no foods. I

am going to call Sampsons office tomorrow about the Neocate juice boxes and

milk. Both AJ's GI and the allergist, wont' take her off of it. That could be

one of her major problems right there. I am not much help, am I ??? Write

soon. Phyllis

December 23, 1999

I only see the blocks when you reply to the , but wondered if it did have

to do with a font. They seem to be fine in the original on my machine.