Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Good Morning All, I too do not undestand the difference between CJD and GSS. Whe I first read a little on Gss I thought dad may have it, But as I read deeper into CJD I realized he has CJD. Unfortunately they are both fatal. However can anyone tell me where I might be able to find information on GSS. Everything I have found gives little information. I am trying to learn as much as possible not only to help my mom and family, but perhaps to help others in the future. Death is so unfair, 15 years ago I lost my husband to a rare brain tumor, now today I am losing dad to a rare (perhaps) brain disease. I too have a great many questions I would like to ask God, since he seems to be the only one who knows the answers. However 15 years ago He gave me strength to take care of Bob and I pray daily He nows gives us the strength to take care of dad and let him go peacefully. Never lose your faith in God and the power of Prayer.-- God Bless You Kathy ICQ 2551093 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Kathy, My mother was diagnosed with GSS. We won't know for sure till we get the results from the brain biopsy at the end of April. I too have tried to get info. on GSS. I only have about 2-3 paragraphs worth. I've rec'd this info. from the internet. CJD & GSS are very similar. Some of the stories I've read on here sound EXACTLY like my mother & others don't. I'm still comparing the 2 diseases & trying to get as much info. as I can. I want to be prepared for this horrendous disease. I have to find the time to meet with a lawyer so my husband & I can draw up a will (a living will) My mom didn't have one. I know she would have not wanted to suffer the way she did. God took her when it was her time. When she was sick I prayed to God not to take her. I was crying. I said I still needed her. 1 week before she died I said to God " if you think it's time to take her then go ahead & take her " (as I was sobbing of course) YOUR NEVER TOO YOUNG TO DRAW UP A WILL !!!!!!! I'm 32 & hubby is 33 but we all know there is no age limit for this disease. Well, Take care & have a nice day. e Quote Link to comment Share on other sites More sharing options...
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