Re: food intolerances

March 15, 2000

Hi Kelsey,

I'm the same way you are but mostly with liquids - if I so much as lean back

during or after a meal, any water or liquids in my meal or that I have drunk

recently will start coming up my throat. My doctor said I might have

gastroparesis, or delayed stomach emptying. I also know that if you have

GERD, you will have eosinophils at the lower end of the esophagus but not

the upper end. I think if you have EE, you'll have eosinophils all along

the whole esophagus - Steph and others with EE, please correct me if I'm

wrong here...

Food allergy as defined by most allergists ONLY involves the IgE-mediated or

immediate hypersensativity reactions. BUT there are actually 4 different

types of hypersensativity reactions, and you can read more about them in the

Merck Manual

(http://www.merck.com/pubs/mmanual/section12/chapter148/148a.htm). It is

only the Type 1 reactions, or classic immediate allergic reactions, that are

tested for on typical skin/blood allergy tests. Type 4 reactions are

IgG-mediated and are typically associated with delayed hypersensativity

although there are instances where IgG will attach to a mast cell and cause

it to degranulate just like IgE normally does. This is why a person with no

detected skin/blood test allergies can have the same swelling, itching,

vomiting, etc. as someone who does have allergies detected on the skin/blood

tests. I'm currently in the process of putting together some links dealing

with all types of hypersensativity reactions, and will post to the group

once the page is completed.

The thalamus controls perception of sensations like touch, pain, hot/cold,

etc., and is tbeorized to be involved in chronic pain disorders. Therefore,

it is possible that a malfunctioning thalamus could potentially make one

more susceptible for neurologically related stomach problems...there are

people with CRPS (Reflex Sympathetic Dystrophy, a chronic pain disorder some

believe to be due to a malfunctioning thalamus) who have severe stomach pain

due to the disorder and not any other identifyable disease.

It sounds like your LES (lower esophageal sphincter) is totally relaxed and

the muscle tone is very low. See

http://home.beseen.com/community/razzle00/reflux.htm for some tips to help

manage the symptoms (I have GERD too). There are surgical procedures that

can help correct that. If you are interested in checking out these

procedures you should talk to your GI doctor about the available options.

I hope this information is helpful. Take care,

-Joy

(husband has EE/EG, allergies, asthma; I have Crohn's disease, allergies,

GERD, RSD, etc.)

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March 15, 2000

Kelsey,

It must be very frustrating for you trying to figure this all out. Sounds like you have done a good job of educating yourself. It will be interesting to see what the Gall bladder test show. I know it seems to cause a lot of different symptoms for different people.

I wish I had some answers for you. All I can offer is a shoulder and sympathy. I wish you luck in finding answers.

I don't think we have been on the list together before. I am an adult with Adult onset EG. Welcome or welcome back...

Judy

October 11, 2005

--- What is meant by LOD and LDN. He really needs to gain the

weight.

Hi,

Sorry, I should've clarified - was writing quickley last night.

Also please note that THESE ARE NOT RELATED DIRECTLY TO SCD, but to

improved gut function for some people. Enough disclaimer ;-)

1) LOD = Low Oxalate Diet. Oxalates are formed in the body natually,

but are also in many foods. There is a new yahoogroup " Trying Low

Oxalates " . Or hit google for low oxalate food lists. Basically if

you've known someone prone to things like kidney stones, arthritis

or other immunoinlammatory disorders, they are usually recommended

to keep off foods high in oxalates (ex. spinach, chocolate, etc) so

as not to excaberate the problem. People with 'leaky gut' can 'leak'

more of these out into their systems than normal gut folks. Fuel to

the metabolic fire.

2) LDN = Low Dose Naltrexone. A good thing to google.This is very

new in use for ASD kids, but it has been becoming common in treament

of people with HIV/AIDS, MS and other disorders where inflammations

and/or immune dysregulation occurs. Dr. J. McCandless runs a group

on yahoo " Autism_LDN " . Naltrexone is generally known for treatment

of chemical substance addicts - it blocks opiod receptors in the

brain, so even if the addicts use, they will feel no " high " . Usually

about 50mg doses.

In treatment of people with immune issues, the dose is

substantially lowered ( " LDN " ) to either 3mg/ml or 6mg/ml

concentrations. The benefit is twofold - since an effect is anti-

inflammatory, it can cool down a " hot gut " . More healing means more

absorption and better bowel function, which means the body can put

some effort into growth and development instad of just fighting a

constant battle with itself. (Increases the " natural killer " T

cells).

The other benefit is just feeling good! In the regular doses of

naltrxone, opiod recepters are blocked 24/7 while the addict is

becoming " clean " . In the LDN application, the receptors are only

blocked for a few hours, during which time the body is saying, " Hey,

what's the deal? My endorphins are being blocked! " so in an effort

to overcompensate, the production and release of endorphins is

revved way up. When the LDN wears off there is an 'endorphin rush' -

the person feels great! This has led to a (in some children) HUGE

leaps in socialization, cognition, and awareness. It happened for my

son.

Basically, the dose is applied topically (it's just the

naltrexone and emu oil) about 11PM (works with the body's circadian

rhythms), and wears off several hours later, so the person using it

wakes up in a great mood. It wears off about 5PM that day if applied

at 11PM.

Sorry to be long winded - check google or the yahoogroups if

interested. HTH!

-christine

>

October 11, 2005

hi i cant find the ldn site - could you post a link for me please

thanks

emma

chrsdonohue chrsdonohue@...> wrote: