Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 need of advice I am coming to the States in 3 weeks to Dr. Sampson's clinic I was wondering if anyone has any suggestions if there is anyone else that we could see to help our Miriam and Yisroel. I don't want to come to the States and just see one doctor. I am coming in to Milwaukee first from April 23-May 2 and then I will be in Ny from May2-May 12 unless someone can help them then I will stay longer If anyone knows any doctors in these to areas let me know. There are no doctors here in Israel that are familiar or deal with EG. What was the longest period of time someone had to be off food. Was the only thing that controlled it was an elemental diet. My Miriam has not been on any food for over 2 years and she has only had vivanex and applejuice. Any time we try anything new she either reacts right away or with in a week. She has had 2 biopsies while being on vivanex and both times there were no eosinophils. If thats the case why is she unable to tolerate anything. My son Yisroel is 20 months and he can only tolerate dietic mothers milk and any time I try a new formula he starts to wheeze or get diareah I have tried vivanex,l-elemental,neocate 1 + and neocate pediatric on him and he cannot tolerate any of them. He can't live on mothers milk his whole life. What can get these kids to eat something even if its limited at least they can have something in their mouth . If anyone knows of anyone else we can see to help us I 'd greatly appreciate it if you could let me know soon so I could make the plans. Thank You Shana ( mother to Miriam 3 EG only on Vivanex 2 years, Yisroel 20 months unable to tolerate anything but mothers milk,asthma , Tehilla 7 healthy ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 I would suggest that you call Dr. in Philadelphia - he used to work with Dr. Sampson in Baltimore at Kennedy Kreiger and they are friends. Hs is in Philadelphia - about 90 miles from New York. His number is (215) 427-6778. Love, Sharon mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda) and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues, sleep problems, sensory integration disorder and now tremors and suspected metabolic disorder or genetic disorder, WHEN WILL THIS END) Quote Link to comment Share on other sites More sharing options...
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