Re: Hi everyone..to Phyllis

[Guest guest]

Try getting those flat depends..they are like sheets that are absorbant. You

can lay them on the bed flat and just change them in the morning.

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>

>Reply-To: eosinophilic gastroenteritis (AT) onelist (DOT) com

>To: " zeos " eosinophilic gastroenteritis (AT) onelist (DOT) com>

>Subject: [eosinophilic gastroenteritis] Hi everyone

>Date: Mon, 2 Aug 1999 08:44:22 -0400

>

>Hope your summers are going well. Ours has been sooooooooo hectic. I am

>watching 6 kids besides my girls. I have another month to go. I wonder if

>I will have any sanity by the end.

>

>Anyway, medically I have been concentrating on AJ's hearing loss. Her EG

>is in control. She eats nothing, is on no meds and is very happy with just

>the Neocate. I was wondering if EG is considered an autoimmune type

>problem. I don't know much about autoimmune diseases and someone asked me

>that. There is a link between them and hearing loss.

>

>Also, AJ is having a potty issue. She wants to wear undies to bed. SHe

>drinks right thru the night. It is just not happening. Even when we wake

>her, it is not enough. She is taking too much in and we need to sleep too.

> This is very upsetting to her. Anyone dealing with any of

>this??????????? She has been potty trained since 18 months and is fine

>for naps, if she naps. It is not like we are trying to get her dry thru

>the night, i just want to help her self esteem.

>

>THanks for listening.

>

>Phyllis--mom to

>

>AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss

>Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies

>

[Guest guest]

Phyllis --

Kody was 3 when we went to night time TPN. He was potty trained then, but

with 1750cc going in overnight, we had to backtrack and re-train him to go

in a diaper overnight. Now we use chux on the bed and he has to be changed

6-7 times a night. Also, when he is having psuedo-obstructive crises,

sometimes he gets liquid stool he can't control (not much, but he'd rather

not get that on underwear).. and we let (encourage) him to wear pull-ups on

those days. It hasn't been a self esteem issue at all yet (he is 4-1/2

now). He accepts it all as part of his disease process and his brothers

obviously do not tease him about it. We'll see what happens at school this

year, but he is in spec ed for speech so I dont think that will be a

problem. This is something I've been thinking about too, but can't afford

to look that far ahead with him to wonder about it. I think Stacey wore

pull-ups for a long time too? I remember reading something about this

months ago.. and it was only as she became a teen that she started getting

up throughout the night.

steph

[eosinophilic gastroenteritis] Hi everyone

>>Date: Mon, 2 Aug 1999 08:44:22 -0400

>>

>>Hope your summers are going well. Ours has been sooooooooo hectic. I am

>>watching 6 kids besides my girls. I have another month to go. I wonder

if

>>I will have any sanity by the end.

>>

>>Anyway, medically I have been concentrating on AJ's hearing loss. Her EG

>>is in control. She eats nothing, is on no meds and is very happy with

just

>>the Neocate. I was wondering if EG is considered an autoimmune type

>>problem. I don't know much about autoimmune diseases and someone asked me

>>that. There is a link between them and hearing loss.

>>

>>Also, AJ is having a potty issue. She wants to wear undies to bed. SHe

>>drinks right thru the night. It is just not happening. Even when we wake

>>her, it is not enough. She is taking too much in and we need to sleep

too.

>> This is very upsetting to her. Anyone dealing with any of

>>this??????????? She has been potty trained since 18 months and is fine

>>for naps, if she naps. It is not like we are trying to get her dry thru

>>the night, i just want to help her self esteem.

>>

>>THanks for listening.

>>

>>Phyllis--mom to

>>

>>AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss

>>Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies

>>

>

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