New Member

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Hi " New " Friends:

My name is Betty Wells. My precios husband, Guy, went home to be with

the Lord on Dec. 5, 1998. Until one week before his death, neither of

us had ever heard of Creutzfeldt-Jakob Disease.

After the diagnosis by a local neurologist, I soon found tht no one else

had heard of it except a verysmall handfull of medical personel. They

had " heard of " but did not " KNOW " about the disease. With the help of

my daughter, I was able to get excellent information off of the Intenet.

I copied and passed out " all the information the I had to medical

personell who was working on my husbands case. The hospital is now

aware of this disease. Thank God!

Now to tell you his symptoms and reactions to this disease is near to

impossible to put it all in this writing. But I will try to make it as

simple as possible.

My husband was a DIABETIC, HEART patient,Had DIABETIC NEUROPATHY,

DIABETIC RETINOPATHY, Been in RENAL FAILURE and on DIALYSIS for 2 years,

ANEMIC, CONJESTIVE HEART FAILURE.

As teh doctors said...any of these could have taken his life. So they

refused to include CJD on the death certificate.....becasue they did not

have enough evidence. Although theyn had the EEG, MRI results and the

word of an ezcellent Neurologist.

SYMPTOMS:

SHAKING...Also a renal failure systoms

JERKING...Also could be renal failure sysmtpm

SLURRED SPEECH...eventuall lost spech

PERSONALITY CHANGE..He was aware

LOST ALL CO-ORDINATON...Slowly

HEARING...more dimished bfoe death

MEMORY. LOSS...Moreso near death

PNEUMONIA...frequently..twice in 2wks.

HEAD...strange drawing sensations

HALLUCINATIONS..with each CJD episode

CRYING...he cried a lot because he could not

understand what was happening.

BOWELS...a major problem 2 months prior to death

I hope I have left ntothing out. But the disturbig part to me

was....most every symptom could havebee mistaken for another problem and

could easily be over looked.

And please don't look down on these poor doctors. They are simpky

" UNlearned " . ALSO f they were all as frustrated and we were.

I have some great ideas on getting this information out to the public.

With everyone working together...WE can make a difference.

After all...look at Gideons army. He started out with 300,00 only to

into battle with 300. And he got the job done with the help of the

Lord. Can do anything with only a remenant of peop, who are willing.

No matter how small out group may look to others...TOGETHER our FAITH

can move MOUNTAINS.

Let's do it!!

Be Blessed in alal yiu do,

Betty.