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Once Again

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Once again Clayton is sick. This is getting ridiculous. Every time I turn

around it is something. He is very congested and coughing. G-tube feeds are

down to 50 cc's again and may have to go lower. He was up almost every hour

last night. He had a very stuffy and runny nose and of course it is going to

his chest. It looks like we will be back on the nebulizer again tomorrow. Also

I think I will be visiting the ped again tomorrow. This is just not fair to

this little boy. I do not understand how he gets sick. I do not take him out

that much around other kids but I guess with Jake in the house he brings in

lots of germs and Clayton is unable to handle them. AND i did get him the flu

shot to try to hold some of this stuff at bay. His stomach also seems to be

bothering him again -- a little blood yesterday in the g-tube -- just a drop

(but in my opinion a drop is too much) and he was hunched over again when I

put his tube in a gave him his meds. Looks like here we go again.

Although on the good news side Clayton is trying to talk a little more -- he

is trying to say thank you and actually tries to sing " I love you " -- the

Barney theme song. For him this is impressive.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sensory integration disorder and now tremors and suspected metabolic disorder,

WHEN WILL THIS END)

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