Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 Original note from Tina: " i am not sure what is > going on the drs don't either, i think when all of this over WE the Parents > should write a book about this whole ordeal with EE\EG seeing that the dr > don't know anymore then we do,probley even less. I am not kidding!!!! " You're right. The doctors don't know what's going on and it's very discouraging. They just told me yesterday that Shane is a very difficult case. He's not being fed tubularly, but I can see where this is heading. I could just cry, and do from time to time to let out the stress. My poor son is scared and depressed and I feel so helpless in trying to help him. Oh well, at least I have a place to vent now with people that are going through it too. And that's a help. Thank you all for that. Lynn Quote Link to comment Share on other sites More sharing options...
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