Quick Update on Spencer

[Guest guest]

Hello everyone,

I hope everyone had a wonderful holiday and will continue to have a great

new year celebration. For those of you on the TPN list, I will get those

cards out I just had a problem with getting my photo's back and I really

wanted to send a photo in them.

I just wanted to send a quick update on Spencer. Well, of course we

couldn't come to Utah without Spencer getting sick. He ran a temp of

104.00 yesterday and we had just a wonderful night last night. I think I

was up every hour with him. Anyway........we have tappered down his

steroids from 7 cc x 2 to 7 cc in the am and 3 cc in the pm. He is now

having about 4 poops a day and is retching just a tad. The poop is frothy

and has white pieces in it everytime we change him. His bum bum is

bleeding as well cause of all of the poops. He didn't start his retching

full power until we were down to two or one cc at night. He is loosing

weight. I believe in the high 16 to barely 17 lb range. Folks.......we

are headed back for the line. I am a little happy about this because he

will start to get all of the nutrician that he needs again. The other

thing is that when we were feeding him 1000 cc's by gut about 6 months ago

he was gaining a little bit of weight. He is loosing. Jennie......we need

to talk about the Central line port that you have found. I will return

your call when we get home in the middle of Janurary.

As for me......my back. Agh!!!!!! I can't stand it anymore. I either

need sugery or have a nerve block or Morphine put directly in. I am

sooooooo sick of talking pain killers. When I don't take them I am in

terrible pain, but I need them. The nausea is terrible and I think I am

getting addicted to them. I guess only natural since they are addictive.

When I get back to MI I think I am going to mean business. Especially

since I want to try to open up an office for my company in the next 6

months.

Well, anyway....sorry to ramble on so. You all have a wonderful holiday.

I won't be on as much cause I have to dial long distance but I will be

checking my mail.

Love,

...Mum to Spencer: Post Pylorimyotomy, Nissen Fundoplication, G-tube,

Tpner, Eosinophilic Colitis, Gastritis, Esophigitis, NeuroPathic Motility

Disorder of the small Bowel, Dumping Syndrome, Non Functional Stomach,

Athsma, Severe allergies, Total Oral Aversion, 18lbs and loosing, 27 inches

tall (at least he isn't loosing in height! LOL) Whew!!!!! AND anything else

not yet diagnosed.