Guest guest Posted November 10, 1998 Report Share Posted November 10, 1998 Dear Group: The Department of Health in the UK is currently reveiwing pentosan to prevent the onset of NVCJD. THIS DRUG MIGHT ALSO WORK FOR GENETIC CJD/GSS. Please write to them. Now, the data is back with the Department of Health in the UK. They are in horror over the risk from blood transfusion of nvCJD and really dont know what to do. It is belived that they are going to give it the Ok fairly soon (i.e. within about a month). So, the way to speed this up and to find out what is really going on is to write to them directly. E.g. Dr. Metters, Department of Health, Whitehall, London, UK and mention that the opportunities for this drug must include people that may develop the disease from genetic reasons. Surely this must be at least investigated... Do not mention my me, thanks. Quote Link to comment Share on other sites More sharing options...
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