Re: [Fwd: THE U.S. MAD COW COVER-UP!!! [MADCOW U .S.A.]]

[Guest guest]

Thats right Kathy, I feel like I have been the one to coin that phrase. We

are all in this together and should not criticize the work of others.

Robin

[Guest guest]

Mr. SingELtary,

I am not in a race to see who can educate more of the public.

This project is serving three purposes.

1. To make a beautiful and lasting Memorial to our Loved Ones. Hopefully it

will last much longer than it takes to find a cure.

2. It is involving members of the group that are generally quiet.

3. It is going to bring awareness of CJD in a whole new way.

It's too bad you can't make it to the conference I am sure that many wanted

to meet you, including me. Also I have always been a big supporter of you

right from the beginning. This is all I am saying about this because I am

not tainting a wonderful project by bickering over it.

Robin

[Guest guest]

Robin, Both you and Terry are correct. The public needs to be made aware of CJD

and the devastating effects it has on families, and the tragedy that everyone

feels. And yes there are many things that can be done to inform others, and yes

they all entail a great deal of work. But lets remember...We are all in this

together. We must support each other to ensure many many others find out about

this disease and encourage those with the knowledge to do new research and

continue research to find out the cause and treatment of CJD. And maybe in the

future we will not have to experience the lost or pain anymore.

Kathy

[Guest guest]

Terry Ease up. You are right Quilts don't hang in the library, but many people

own quilt. Look at the Huge Quilt in memory of Aids victims. It has drawn a

great deal of attention to Aids. No it may not educate, but what it does is

brings attention to the problem. Then people become more interested in the

subject and begin to research it. By researching the information, they learn and

hopefully will begin to tmore about it.

I am sorry you will miss the conference. I am hoping it will be informative and

bring all of us closer together. Dr. Pruisner was here at Washington University

about 2 weeks ago. Unfortunately I did not get to hear him lecture. However I

was told by Dad's Neurologist the place was overflowing with people. The quilt

may bring comfort to many families, while bring attention to the disease. So

Robin you go for it and you get it completed. May it end up being smaller than

the aids quilt in hopes to find a cure. And Terry you keep pressing on with

sending out vaulable information for us to read. Both of you are providing us

with Great support and overflowing information. Together it will work.

Kathy

" Terry S. Singeltary Sr. " flounder@...> on 04/09/99 10:21:18 AM

Please respond to cjdvoice (AT) onelist (DOT) com

To: cjdvoice (AT) onelist (DOT) com

cc: (bcc: Kathy RN/Anesthesiology/Washington

University)

Subject: Re: [Fwd: THE U.S. " MAD COW " COVER-UP!!!

[MADCOW U.S.A.]]

Go for it Robin, I am not going to argue with you. As I said, it's your rights,

and my thoughts................ we both are entitled to them, at least the last

time I looked. But,

I would not bank on more people being educated by the quilt, than by a book in a

library. I remember when Mom first was diagnosed with CJD. I went to the Public

Library, and

TRIED to look up some books on CJD. There were none. Just some Government

information on CJD. Of course, I saw no QUILTS hanging from the Library

either........

By the way, I will not be able to make it to the Conference (for personel

reasons), so if you would like to Chastise me for that to, go ahead

on..............

Mr. Singeltary (Robin it's EL)

XOXOBB@... wrote:

> From: XOXOBB@...

>

> Mr. Singletary,

>

> This quilt, of which we have spoken about for weeks on end, will probably

> bring attention to CJD to a whole population of people who probably wouldn't

> pick up Mad Cow U.S.A. until they see it. There are more ways to do things

> than just by word and they are all alot of work. This is not only my

> opinion, it's the truth.

>

> Robin

>

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[Guest guest]

GOOD FOR YOU ROBIN! AND STICK WITH IT GIRL. THE QUILT IS A BEAUTIFUL PROJECT.

AND WHEN DAD PASSES AWAY, I HOPE TO BE ONE WHO ADDS HIM TO THIS BEAUTIFUL

MEMORIAL AND PIECE OF ART!

KATHY

[Guest guest]

Go...Girlfriend....you are a blessing to us and God will bless your

efforts. We ALL have something we can do and maybe others will never

see or ever know what it was. But the most important thing is not to

please man, but to please God. And child you ARE pleasing to Him.

Love,

Betty

[Guest guest]

In a message dated 4/9/99 10:30:23 AM Central Daylight Time,

martink@... writes:

<< Terry Ease up. You are right Quilts don't hang in the library, but many

people

own quilt. Look at the Huge Quilt in memory of Aids victims. It has drawn a

great deal of attention to Aids. No it may not educate, but what it does is

brings attention to the problem. Then people become more interested in the

subject and begin to research it. By researching the information, they learn

and

hopefully will begin to tmore about it.

I am sorry you will miss the conference. I am hoping it will be informative

and

bring all of us closer together. Dr. Pruisner was here at Washington

University

about 2 weeks ago. Unfortunately I did not get to hear him lecture. However I

was told by Dad's Neurologist the place was overflowing with people. The

quilt

may bring comfort to many families, while bring attention to the disease. So

Robin you go for it and you get it completed. May it end up being smaller

than

the aids quilt in hopes to find a cure. And Terry you keep pressing on with

sending out vaulable information for us to read. Both of you are providing us

with Great support and overflowing information. Together it will work.

Kathy

>>

AMEN!!!

Yvette