Guest guest Posted April 25, 1999 Report Share Posted April 25, 1999 Well it has been a while since I wrote back on BJ. He was up to nearly 14 kilos and doing well. I should have knocked on wood or something. He is back on Prednisone (15 mg a day) and is down to 12.5 kilos at our last check which was on April 7th. Even on the Prednisone he is pooping constantly and the undigested food is there constantly now again too. He hasn't complained too much of his tummy hurting since being on the Prednisone, before he was in tears a lot. I think our next step will be to take away food from him and go back to the formula which will mean another ng tube or a g-tube. They haven't rescoped him, I know (and I think the GI does too) that it is a mess down there AGAIN. I keep telling the GI doc, I thought you said he was better, foolishly I thought this mean forever. Now they are telling us that even the ones who improve and have clean biopsies, about 25% fail and and have problems for the rest of their life. Well, I guess life was just WAYY too smooth. Dawn, mommy to Dakota, 6 and BJ, 3 (eosinophil gastro, reflux, asthma) Quote Link to comment Share on other sites More sharing options...
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