Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Great letter, Robin! Let us know if you hear from him. Beverly G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Great letter, Robin! Let us know if you hear from him. Beverly G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Great letter, Robin! Let us know if you hear from him. Beverly G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Hi Robin, could you please send me a brochure on the conference. If it has to be mailed, my address is: Kaner 1408 22nd Street Niceville, FL 32578 Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 , It is in the mailbox waiting for the postman. Thanks. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 You are right Terry, thats very important. As I said there were so many things that could be said. I was reading over other material this morning and I think that the rendering plants need much more regulations. We don't seem to push this topic much or is there more regulations than I am aware of? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Thanks Robin - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Excellent letter, but we need to imphasize (THIS IS VERY IMPORTANT), not only the DOWNER cattle, but ALL CATTLE RAISED SINCE 1990.... WHY??????? Because, how many of those 900,000,000 cattle raised since 1990, were harboring the B.S.E. agent, WITHOUT SYMPTOMS????????????????? 900,000,000 CATTLE RAISED SINCE 1990, APPRX. 98,000+ DOWNER CATTLEY ANNUALLY APPRX. 7,000 BRAINS CHECKED FOR BSE SINCE 1990 APPRX. SCRAPIE RUNNING RAMPANT FOR YEARS IN THE U.S. OUR RENDERING AND FEEDING PRACTICES MIRRORED THAT OF THE U.K., (some say it was WORSE)....... CJD ON THE RISE, IN YOUNG PEOPLE ALSO????????? It just doesn't take a )@($#%@&* DEGREE, to figure this out........... MADSON XOXOBB@... wrote: > From: XOXOBB@... > > Here is the letter inviting Koplan to the conference. I know there > is so much to say, I feel that I have covered the latest topics we have > spoken about. It will be interesting to see what he says. > > Robin > > P. Koplan, M.D. > Director > National Center for Infectious Disease Control > 1600 Clifton Road N.E. > Bldg. CLFT 3 116 > Mail Stop A39 > Atlanta, GA 30333 > > Dear Dr. Koplan, > > Thank you for acknowledging my name being added to the Citizen Petition > regarding transmissible spongiform encephalopathy. I will be awaiting your > response. > > I am also writing to invite you to a conference being planned for people who > have been affected by Cruetzfeldt-Jakob Disease. It will consist of families > of CJD victims; individuals who have received blood recall notices and also > the human growth hormone before it became synthetic. We also have extended > invitations to funeral directors and people in the medical field. > > We as CJD families are unhappy with the way the Centers for Disease Control > handle the reporting of CJD cases. You can obviously tell this from the > Citizens Petition. We feel that it does not want to know or find all the > cases, hence not making it a mandatorily reportable disease. Being a > computer based group we have new people sign on with us every week who have > been affected by CJD. I am sure the ones who don't have computers are > equally as many or more. > > We also feel that it doesn't want to acknowledge that there are more cases of > CJD in younger people, not just in the so-called average age of 57-70. I can > tell you of three who lived short distance from each other, age 27, 30, and > 35. The similar factor here, they were hunters. That would mean Chronic > Wasting Disease. Is anything being done about this? There is documentation > that it is in the United States. > > We keep being told there is no BSE in the United States. I understand that > of 98,000 downer cows only 7,000 brains have been tested for BSE. Do you > really think that this is a significant enough amount to feel comfortable > with our lives? It is a pittance. The United States has used the same feeding > practices that the U.K. did. Why would you think that we could be so lucky > as to bypass an outbreak of BSE? America is a great country but I don't > think that makes a difference to BSE. > > We understand what an economical impact it would make should BSE be found in > our beef. On the other hand what a horror it would be to have victims of CJD > numbering the same as victims of AIDS. After all it was swept under the rug > till it couldn't be ignored any longer. At least with AIDS there are some > treatments; there is time for the victim and hope. With CJD there is > nothing. > > Now there is one more thing that we have just learned about. It is being > recommended not to have autopsies because it may contaminate the embalmers. > Has there been documentation done showing that more funeral workers have died > from CJD? Is this just one more step to stop the diagnosing of it? You know > that families want a proper funeral for their loved one and this could stop > the funeral home from doing this or from the family having an official > diagnosis for fear they won't get to have the funeral. As long as the > funeral home takes the universal precautions there are no problems. > > You may think we are alarmists but we have been through the horror of CJD and > it's not something we would wish on anyone. We have a great fear for our > children and grandchildren. > > Please consider coming and speaking with us. We would like answers. We are > interested, intelligent and would like to work together, instead of against. > > Top researchers in the U.S. have graciously agreed to attend and speak. > Dr.'s Brown and Clarence Gibbs. Dr. Bernardino Ghetti and Dr. > Bastian. Hansen who represents the Consumers Union and Marie Kassi > who is a lecturer on contamination and burial. There may be others but have > not had a confirmation from them yet. > > I am enclosing a few brochures on the conference. Please know that you would > be welcome. My e-mail address is on the brochures along with an address. > Contact me should you have any questions. > > Sincerely yours, > > Robin > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.onelist.com > Onelist: The leading provider of free email list services > ------------------------------------------------------------------------ > If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or Beverly G at Bevalso@.... Quote Link to comment Share on other sites More sharing options...
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