Guest guest Posted December 19, 1999 Report Share Posted December 19, 1999 Thanks Steph - I'll let him know what you said about your experience with the food holiday. That is valuable info, because one of his main concerns is the severe muscle cramps he gets when taking higher doses of Prednisone (but that happened before he was taking calcium supplements). Take care, -Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 1999 Report Share Posted December 20, 1999 Joy, As you know we just did this for our trip to Disney. REmember, though,that we have EE and not EG so there may be a difference. However, it worked fairly well with the kids. There are the side effects that are more pronounced on higher doses which I am sure you are aware of. I will tell you that I'm really not sure it was worth it for me in the end. It was worth it for my husband, becuase he really needed to feel " normal " wiht a " normal " family for a few days. I didnt feel well the whole week, had the side effects of prednisone, still had some chest pain (though not much) and some GI upset iether from the prednisone or the food. I was actually glad to get back and taper off and get back to formula. Honestly, I'm not sure if I would have been just as well off just eating and getting sick... for us, the big issue is choking and I didnt choke, but still had to watch what I tried to eat. I was already on a low dose too (5mg) then went up to 60mg. The kids went to 40mg. Steph. [eosinophilic gastroenteritis] food holiday Hi all, My husband is interested in the idea of a " food holiday, " where he would take a higher dose of Prednisone to enable him to enjoy a few more foods than what he is normally able to eat on his regular 5mg/day Prednisone dose. I don't know enough about how the eos work, even though I've been doing a lot of reading about it, to know how to go about this " food holiday. " Any tips, suggestions, hints, etc. on how to carry out a " food holiday " are welcome, as well as anything to watch out for or any " gotcha's " with doing this - any info would be very appreciated. Thanks, -Joy (husband has EG/EE, asthma & allergies) Quote Link to comment Share on other sites More sharing options...
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