Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 Hi Barbara: I remember when you told me of the loss of your son three years ago today... October 21st. Sometimes, I am at a loss for words. However, I wanted to let you know that my spirit is with you today as you feel and experience the memories. I have lifted you up to God in prayer that He will be most especially near you today and that He will lift and support you today. I know He will sustain you today and forever more. Also, I want you to know how much your efforts are deeply appreciated in creating such lovely websites (CJD Watch & CJD Faces) to join CJD Voice in our efforts to create increased public awareness and knowledge of the horrible disease we have experienced. I feel permitted to speak for all members of CJD Voice when I say... " thank you, Barbara " . I also hope all members of CJD Voice, who have a loved one presently diagnosed with CJD, or have already lost their loved one to CJD, will support your efforts by submitting their completed CJD Watch Information submission form to you as soon as possible. We have to keep networking to reach out to those who have experienced CJD in some way or may experience in the future. It is wonderful to see so many members interested in doing news interviews/articles about their CJD experience. I found the following poem very comforting... God bless you, Barbara. Thoughtfully, Dolly On Angels Wings I don't know why the angels came, And decided to take you away. They must have needed someone very special, When they carried you on their wings that day. I wondered how they could take you from me, And leave me here on my own. Then I realized your love would live on inside me, So in my heart, I would never be alone. God must have had a greater purpose for you, When He decided your time on earth was done. He must have wanted you for a heavenly angel, So you would be able to watch over everyone. The angels told Him you were so very special, And could make the world a greater place to live. So with wings full of love, they took you to Heaven, And now everyone can feel all the love you have to give. Written by: Pamela Hall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 In a message dated 10/21/98 11:43:56 AM Pacific Daylight Time, DBC006 writes: << Written by: Pamela Hall >> The poem is lovely Dolly. I truly appreciate you all. I know together we can make a difference for future generations, if we all work together. I cannot do this all myself, I depend on all you good and kind people to help with this project. It may mean the difference between life and death for our children and grandchildren... It is important. As for my son, three years ago to the present, God has sustained me through this, I couldn't have survived if He hadn't always been there to dry my tears, and quiet my screams. I call on him daily, believe me. Only through the Grace of God, have I survived. I leave everything in His hands. Thank you all, for your lovely cards and words of comfort. God Bless, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 In a message dated 10/21/98 11:43:56 AM Pacific Daylight Time, DBC006 writes: << Written by: Pamela Hall >> The poem is lovely Dolly. I truly appreciate you all. I know together we can make a difference for future generations, if we all work together. I cannot do this all myself, I depend on all you good and kind people to help with this project. It may mean the difference between life and death for our children and grandchildren... It is important. As for my son, three years ago to the present, God has sustained me through this, I couldn't have survived if He hadn't always been there to dry my tears, and quiet my screams. I call on him daily, believe me. Only through the Grace of God, have I survived. I leave everything in His hands. Thank you all, for your lovely cards and words of comfort. God Bless, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 Dear Barbara, I send you my sincere thoughts of caring and love at this time. I also want to thank you and the others for all the caring and work you have put forth. It is true that we have a strong and meaningful purpose to protect are children and the children which follow. Most sincerely, Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 In a message dated 10/21/98 3:53:47 PM Pacific Daylight Time, GlowUSA@... writes: << It is true that we have a strong and meaningful purpose to protect are children and the children which follow. >> Thank you Gloria, I really appreciate all the warm wonderful people in CJD Voice, their caring got me involved in the first place. And here we are, working on a tremendous project, that could possibly help all of us and to get the reporting of this disease in every state, and more research and a CURE. I am not, nor can I do this alone, it takes all of us to work on it, and I am ever grateful to you all.. Thank you for the sympathy you sent for my son , I miss him. A lot. Warm Regards, Barbara Quote Link to comment Share on other sites More sharing options...
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