Today Show, Alzheimers & CJD

October 7, 1998

Just a quick note to let everyone know that the Today Show is doing a series

on Alzheimers Disease this week and it presents an opportunity for us. Caught

one segment yesterday and it seemed well done. Through their web

site--Today@... (I think that right), I emailed them a letter regarding

CJD and how often it is misdiagnosed as Alzheimers. I included facts that

possibly as many as 13% of AD is really CJD. I asked them to mention or

question the doctors they were interviewing about it to alert people that CJD

is out there and confused with AD. Also told them that it was not as rare it

seemed, but rather a victim of misdiagnosis. Got an email back instantly

thanking me for my email. Whooppee.

Who knows if they'll do anything--I couldn't watch it today.

More importantly, their web site at msnbc.com has this email reply available

at the bottom of the site. It is really easy to do. Maybe if everyone took a

moment and passed on information to NBC we could get some publicity. You know

the old saying about " the squeaky wheel " --let's be the squeaky wheel.

Vicki

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