Guest guest Posted January 18, 1999 Report Share Posted January 18, 1999 Headaches from aspartame are pretty bad but..........just a mouthful of anything containing aspartame gives me the GALLOPING TROTS!! I was only a day or so in recovery from triple bypass surgery when I asked for some ginger ale and specified NO DIET STUFF. I didn't think to look at the can until after I'd slaked my thirst. Sure enough they'd slipped me the stuff containing " nutra-sweet " . Within a very short time I was in absolute agony with diarrhea. There I was after having had my chest ripped apart from stem to stern, plus an incision on my right leg from groin to below the knee staggering to the head every few minutes to explosively empty my innards. If I hadn't been so weak from the combination of assaults on my poor aging body the entire staff of Mass. General Hospital would have been in a state of alarm from the expletives echoing violently from my room. As you know, I survived the ordeal and the Hospital did hear from me after my strength returned. So much for aspartame. If anyone wants to wait until there is irrefutable evidence that the blasted stuff is toxic let it be on their heads. Cheers! Jeanne and Mr. Biggles in Poultney VT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Being thoroughly involved in the diabetic lifestyle, I have heard this aspartame/nutrasweet debate ad nauseum, as I am sure others have too. Can we please move on to RLS now and let this " nutra-poison " thread die. We could debate this topic 'til the cows come home and nothing will be solved nor accomplished. OBTW, I like saccharin too! RAINBOWPED@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Being thoroughly involved in the diabetic lifestyle, I have heard this aspartame/nutrasweet debate ad nauseum, as I am sure others have too. Can we please move on to RLS now and let this " nutra-poison " thread die. We could debate this topic 'til the cows come home and nothing will be solved nor accomplished. OBTW, I like saccharin too! RAINBOWPED@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Being thoroughly involved in the diabetic lifestyle, I have heard this aspartame/nutrasweet debate ad nauseum, as I am sure others have too. Can we please move on to RLS now and let this " nutra-poison " thread die. We could debate this topic 'til the cows come home and nothing will be solved nor accomplished. OBTW, I like saccharin too! RAINBOWPED@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 , I believe it. How many times have you heard of people getting headaches from aspartame? (I have. several times) I do not & have NEVER eaten anything artificial. Aspartame is very bad for you! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 , I believe it. How many times have you heard of people getting headaches from aspartame? (I have. several times) I do not & have NEVER eaten anything artificial. Aspartame is very bad for you! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 1999 Report Share Posted February 10, 1999 Oke do kee. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 1999 Report Share Posted February 10, 1999 Don - Glad I'm " over the hill " and don't worry so much about bikini season! As a former blond, I'm dizzy enough for life. Shar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Man, I love those fat-free Pringles with the Olean in them. I also read up about the chemistry and don't have a problem with the process used to develop the fat molecule that can't be absorbed by the body. In your body, certain chemical processes occur all the time, requiring trace elements and minerals and multitudes of enzymes. Some of these processes are well understood, some aren't. That's why we get competing claims from subsequent studies. You can't follow every molecule of fuel that your body uses, and once it goes in the mouth, it's all chemistry from then on. Yes, you should watch what you eat, but unless you want to farm for yourself, you will always have to trust something. Let me ask this (incendiary) question of you. Let's say that a scientist spends the next few years in a lab, and out of the goodness of his/her heart, discovers a treatment for CJD. However, we soon learn that the reason s/he had so much time and resources available is because s/he was the head of the team that developed Aspartame and/or Olean. Do we now give up our conspiracy theories about these two artificial products so that we can embrace the CJD treatment, or do we throw the one thing we've been hoping for out because of our prejudices against " Big Science? " Every third letter on this list condemns the scientific community in part or in whole. If you don't think an unlimited budget can manufacture an artificial sweetener or fake fat safely, why would you ever take a vaccine or a pain killer or even a treatment for CJD? > Re: aspartame > > > From: Kristi118@... > > Shar, your right (I'm sure I have) Another thing that I'm NOT > crazy about are > those > " WOW " potato chips. Again, another artificial product that has > been added. > Several people at work have complained about stomach cramps & > diarrihea from > eating these chips. I've never tasted them. H-E-L-L-O! When > will the public > realize that they're killing themselves by eating these artificial > ingrediants/additives/preservities. EAT WHAT GOD HAS INTENDED US TO EAT. > The food that he's given us. All natural fruits & vegetables. (from the > ground -from the dirt that's been created by the Lord). I try to > stick to the > basics. (it's hard though > when aspartame is in practically everything we eat) I'm > constantly looking at > the food labels. Aspartame is practically in every brand of > chewing gum & in > every yogurt > (to name just a few) Guys, we all know that Aspartame does not > cause CJD but > I'm sure it does contribute to it. Let's stay away from that > garbage & take > care of ourselves (noone else will) > Thanks & have a nice day, > e > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 : I don't think members of Voice condemn the members of the scientific/medical community with the frequency you describe (1 email out of 3); however, these members have experienced first-hand the lack of knowledge in the medical community about a disease that killed their loved one. Can you blame them for complaining? No one else seems to want to listen but Voice members who know exactly how they feel. My personal dealings with doctors and CJD has been less than wonderful. Some are very open-minded about learning more about CJD, but many more are patronizing, arrogant and so full of themselves that they are certain that they cannot learn anything from a mere " mortal " (CJD family member). They don't want to listen and learn, yet when family members ask them what is wrong with their loved one, they throw up their hands and shake their heads (or give wrong diagnoses). I believe that doctors like you will make a difference. Unfortunately, there are many bitter families out there who have received no compassion, no understanding and substandard care of their loved one with CJD -- can you really blame us for venting our feelings here? After all, this is a support group for people who have lost loved ones to this horror. Please don't take it personally. Beverly G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 : I don't think members of Voice condemn the members of the scientific/medical community with the frequency you describe (1 email out of 3); however, these members have experienced first-hand the lack of knowledge in the medical community about a disease that killed their loved one. Can you blame them for complaining? No one else seems to want to listen but Voice members who know exactly how they feel. My personal dealings with doctors and CJD has been less than wonderful. Some are very open-minded about learning more about CJD, but many more are patronizing, arrogant and so full of themselves that they are certain that they cannot learn anything from a mere " mortal " (CJD family member). They don't want to listen and learn, yet when family members ask them what is wrong with their loved one, they throw up their hands and shake their heads (or give wrong diagnoses). I believe that doctors like you will make a difference. Unfortunately, there are many bitter families out there who have received no compassion, no understanding and substandard care of their loved one with CJD -- can you really blame us for venting our feelings here? After all, this is a support group for people who have lost loved ones to this horror. Please don't take it personally. Beverly G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 : I don't think members of Voice condemn the members of the scientific/medical community with the frequency you describe (1 email out of 3); however, these members have experienced first-hand the lack of knowledge in the medical community about a disease that killed their loved one. Can you blame them for complaining? No one else seems to want to listen but Voice members who know exactly how they feel. My personal dealings with doctors and CJD has been less than wonderful. Some are very open-minded about learning more about CJD, but many more are patronizing, arrogant and so full of themselves that they are certain that they cannot learn anything from a mere " mortal " (CJD family member). They don't want to listen and learn, yet when family members ask them what is wrong with their loved one, they throw up their hands and shake their heads (or give wrong diagnoses). I believe that doctors like you will make a difference. Unfortunately, there are many bitter families out there who have received no compassion, no understanding and substandard care of their loved one with CJD -- can you really blame us for venting our feelings here? After all, this is a support group for people who have lost loved ones to this horror. Please don't take it personally. Beverly G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 , I think you should watch that movie " The Doctor " starring Hurt. I think every doctor or doctor-in-training should watch that movie at least once a year. Just because we didn't go to medical school, doesn't mean we can't use our ears and eyes as well as the next person. Even though our family had a relatively good experience with the medical community during our mother's illness and death, I will never forget the unfeeling way she was written off as soon as she was diagnosed. When we offered her as a study subject for the neurologists who diagnosed her at a TEACHNG HOSPITAL in Boston, we were told that " we already have enough data on this disease. " Excuse me while I choke on the callousness of that statement form a man who couldn't tell us how my mother contracted CJD, or that he could trat it or that he could cure it. I had to come to this website to learn anything about the disease that he had enough " data " on! Excuse me if I sound bitter, because I am. As the owner of a gas station, I should be able to explain to doctors why gas for their BMWs is cheaper this year than last; I shouldn't have to explain what CJD can do to a human being and why I don't want their misguided good works to do the same to me. Sorry if I got off on a Dennis rant... Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 , I think you should watch that movie " The Doctor " starring Hurt. I think every doctor or doctor-in-training should watch that movie at least once a year. Just because we didn't go to medical school, doesn't mean we can't use our ears and eyes as well as the next person. Even though our family had a relatively good experience with the medical community during our mother's illness and death, I will never forget the unfeeling way she was written off as soon as she was diagnosed. When we offered her as a study subject for the neurologists who diagnosed her at a TEACHNG HOSPITAL in Boston, we were told that " we already have enough data on this disease. " Excuse me while I choke on the callousness of that statement form a man who couldn't tell us how my mother contracted CJD, or that he could trat it or that he could cure it. I had to come to this website to learn anything about the disease that he had enough " data " on! Excuse me if I sound bitter, because I am. As the owner of a gas station, I should be able to explain to doctors why gas for their BMWs is cheaper this year than last; I shouldn't have to explain what CJD can do to a human being and why I don't want their misguided good works to do the same to me. Sorry if I got off on a Dennis rant... Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 , I think you should watch that movie " The Doctor " starring Hurt. I think every doctor or doctor-in-training should watch that movie at least once a year. Just because we didn't go to medical school, doesn't mean we can't use our ears and eyes as well as the next person. Even though our family had a relatively good experience with the medical community during our mother's illness and death, I will never forget the unfeeling way she was written off as soon as she was diagnosed. When we offered her as a study subject for the neurologists who diagnosed her at a TEACHNG HOSPITAL in Boston, we were told that " we already have enough data on this disease. " Excuse me while I choke on the callousness of that statement form a man who couldn't tell us how my mother contracted CJD, or that he could trat it or that he could cure it. I had to come to this website to learn anything about the disease that he had enough " data " on! Excuse me if I sound bitter, because I am. As the owner of a gas station, I should be able to explain to doctors why gas for their BMWs is cheaper this year than last; I shouldn't have to explain what CJD can do to a human being and why I don't want their misguided good works to do the same to me. Sorry if I got off on a Dennis rant... Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Well Said!!!!!!!!! Re: aspartame >From: BevAlso@... > >: >I don't think members of Voice condemn the members of the scientific/medical >community with the frequency you describe (1 email out of 3); however, these >members have experienced first-hand the lack of knowledge in the medical >community about a disease that killed their loved one. Can you blame them for >complaining? No one else seems to want to listen but Voice members who know >exactly how they feel. > >My personal dealings with doctors and CJD has been less than wonderful. Some >are very open-minded about learning more about CJD, but many more are >patronizing, arrogant and so full of themselves that they are certain that >they cannot learn anything from a mere " mortal " (CJD family member). They >don't want to listen and learn, yet when family members ask them what is wrong >with their loved one, they throw up their hands and shake their heads (or give >wrong diagnoses). > >I believe that doctors like you will make a difference. Unfortunately, there >are many bitter families out there who have received no compassion, no >understanding and substandard care of their loved one with CJD -- can you >really blame us for venting our feelings here? After all, this is a support >group for people who have lost loved ones to this horror. Please don't take >it personally. >Beverly G > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Well Said!!!!!!!!! Re: aspartame >From: BevAlso@... > >: >I don't think members of Voice condemn the members of the scientific/medical >community with the frequency you describe (1 email out of 3); however, these >members have experienced first-hand the lack of knowledge in the medical >community about a disease that killed their loved one. Can you blame them for >complaining? No one else seems to want to listen but Voice members who know >exactly how they feel. > >My personal dealings with doctors and CJD has been less than wonderful. Some >are very open-minded about learning more about CJD, but many more are >patronizing, arrogant and so full of themselves that they are certain that >they cannot learn anything from a mere " mortal " (CJD family member). They >don't want to listen and learn, yet when family members ask them what is wrong >with their loved one, they throw up their hands and shake their heads (or give >wrong diagnoses). > >I believe that doctors like you will make a difference. Unfortunately, there >are many bitter families out there who have received no compassion, no >understanding and substandard care of their loved one with CJD -- can you >really blame us for venting our feelings here? After all, this is a support >group for people who have lost loved ones to this horror. Please don't take >it personally. >Beverly G > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Well Said!!!!!!!!! Re: aspartame >From: BevAlso@... > >: >I don't think members of Voice condemn the members of the scientific/medical >community with the frequency you describe (1 email out of 3); however, these >members have experienced first-hand the lack of knowledge in the medical >community about a disease that killed their loved one. Can you blame them for >complaining? No one else seems to want to listen but Voice members who know >exactly how they feel. > >My personal dealings with doctors and CJD has been less than wonderful. Some >are very open-minded about learning more about CJD, but many more are >patronizing, arrogant and so full of themselves that they are certain that >they cannot learn anything from a mere " mortal " (CJD family member). They >don't want to listen and learn, yet when family members ask them what is wrong >with their loved one, they throw up their hands and shake their heads (or give >wrong diagnoses). > >I believe that doctors like you will make a difference. Unfortunately, there >are many bitter families out there who have received no compassion, no >understanding and substandard care of their loved one with CJD -- can you >really blame us for venting our feelings here? After all, this is a support >group for people who have lost loved ones to this horror. Please don't take >it personally. >Beverly G > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Beverly, I agree w/you 100% - NOONE understands what we went through except all of you " CJDVoice " members. Out of the possible 6 or 7 doctors that we saw only 2 were caring & compassionate. Like you said, they threw there arms up in the air & didn't care or didn't have a diagnosis. I felt so helpless when my mother was deteriorating. The doctors couldn't/wouldn't do anything & the family couldn't do any- thing. We had to watch her die. This support group is great & I will try to get more involved. Thanks again, e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Amen, e!!! Shar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 I mentioned the aspartame discussion here to some friends last evening. The first friend was a former chemist with G.D. Searle (the co. that invented it) and worked on the research for aspartame before they brought it to market. She told me it is an amino acid that can attach to neurons. The other friend had suffered a serious bout of depression and stated that her doctors had taken her off all aspartame products because it interfered with the neuron processing in the brain and could make a case of depression worse. I had no idea it was an amino acid. It makes sense that there would be some effect, especially at higher quantities. It makes me wonder what all these teenage girls are doing to themselves as they drink the diet stuff and eat diet foods in great quantities. I drink 2 -3 glasses of diet cola each day, all caffeine free. I thought I was doing well to eliminate sugar and caffeine, since I really do enjoy the carbonation and non-sweet taste of diet cola. Oh well--maybe plain club soda for me from now on. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 In response to the letter below....The first hospital we took our mother to labeled her as " manic-depressive " and put her on Prozac. Later asking us to try a nicotine patch....as it was suppose to help with her memory...(?) Of course we said " no! " . After 15 long....horrible days....we took our mother to Massachusetts General Hosp. in Boston. Where not only did they diagnose it almost immediately but the many doctor's and nurses that worked with our mom....in addition to keeping us informed on a daily basis were WONDERFUL..... They admitted if they didn't know enough about the disease, yet were extremely compassionate and caring with both our mom and us. I can't say enough about Mass. General Hosp. Suzanne Re: aspartame >From: BevAlso@... > >: >I don't think members of Voice condemn the members of the scientific/medical >community with the frequency you describe (1 email out of 3); however, these >members have experienced first-hand the lack of knowledge in the medical >community about a disease that killed their loved one. Can you blame them for >complaining? No one else seems to want to listen but Voice members who know >exactly how they feel. > >My personal dealings with doctors and CJD has been less than wonderful. Some >are very open-minded about learning more about CJD, but many more are >patronizing, arrogant and so full of themselves that they are certain that >they cannot learn anything from a mere " mortal " (CJD family member). They >don't want to listen and learn, yet when family members ask them what is wrong >with their loved one, they throw up their hands and shake their heads (or give >wrong diagnoses). > >I believe that doctors like you will make a difference. Unfortunately, there >are many bitter families out there who have received no compassion, no >understanding and substandard care of their loved one with CJD -- can you >really blame us for venting our feelings here? After all, this is a support >group for people who have lost loved ones to this horror. Please don't take >it personally. >Beverly G > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 1999 Report Share Posted October 10, 1999 The reason I try to avoid the aspartame is not for any of the health reasons that make me think it is bad for me. Some Atkins followers have found that it tends to keep them from losing as well. I think someone said it was the citric acid. Also sometimes the sweet taste makes some people crave sweet things. I don't want to give up the aspartame but I am not sure that it is the best thing for me because of how it affects me. Also, when I first went on induction I didn't realize that aspartame and saccharin both have carbs. B Quote Link to comment Share on other sites More sharing options...
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