Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 Hi everyone, Well I've been in a percocet fog. for the last few days. I no longer need pain meds. Too bad, as I have not had this kind of releif for my RLS in a very long time. I don't even think about my legs! But all of that ends tonight. Jeanne, I got my cholesteral down by taking slo-niacin. That with my diet brought it down 30 points. There is a little flushing of the skin, but the slo-niacin is time released, so the flushing is minimal. Drink a lot of water too.That helps. I went to the wellness center and got a " buddy " . She is in pretty bad shape, but what a hoot. She's gonna be wonderful to get to know. My final lab reports came back. No cancer in any nodes, and no cancer in my tissues. I have the feeling I've alrealdy told you guys this! I may not have to have the kind of chemo that makes the hair fall out. I'm hoping. But if I do, I'm gonna shave my head and dye it purple, like a Warrior! Jodi, I'm so glad to hear that your having a repreive from your RLS. Connie, did you sleep yet? Have a great weekend my friends. Whatever we do, don't diet! Elaine, Malibu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 In a message dated 3/14/01 1:36:14 PM Pacific Standard Time, godave@... writes: << , hope you were able to get your meds today. Can't believe that doctor gave you medication you were allergic to. What did he give you. Last time I had an infection I took Cipro. Worked OK for me and I'm allergic to just about everything else. I don't dare take sulfa based drugs, that would flare me up after one pill. >> Marilyn and group, Well... I didn't get my meds until 7pm tonight. Marilyn, I'm alergic to cipro and the drug he gave me yesterday was in the same class. When I finally got them to call it in tonight, our pharmacy's computer was down and couldn't fill it. Had to have them fax it to another pharmacy. Now, the good news. The new drug is septra, a sulfa drug......Help!!! is this going to start another flare????? Oh well..... I'll soon find out because I just took one. LOL Gosh, I have to get these kidneys back in shape. Feel like I have a knife going through my back to the front of my stomach. Sooooo tired too. Fever & chills. Keep your fingers crossed that I can take the sulfa drug..... Went to the sleep dr today and got the results from my sleep study. My machine was set at 6 and today he raised it to 12. Still wasn't even getting into stage 3 or 4 sleep. Also got a humidifier to go with the c pap. This should stop the burning and dryness. Will try it tonight..... If you don't hear from me tomorrow, you'll know the new pressure blew me out of here. LOL Take care and hope everyone will have a great tomorrow. HUgs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Marilyn, we had sun on Wednesday, we all noticed since we hadn't seen it in a while. Today is back to normal, grey, rain (changing to snow) and downright yucky! I think my flowers are starting to come up, it's just not warm enough to go see them! Where is SPRING? Glad the storm didn't do any more damage than dirty windows - maybe the rain will wash them for you! It's pretty quiet today online. Has anyone heard how Heidi's interview went?? Hope everyone is healthy and painfree today. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 Marilyn, How much do you up your pred when the Vasculitis flares up? My rheumy wants me down to 25 mg a day. I'm at 28 now and flaring like crazy, but I hate to go back up on the Pred. Wish I could plant some flowers, we had some light snow this morning. Oh Where is spring??? I am tired of snow and cold. LOL Have fun baking today, the cookie bars sound good. Hugs, Sandy > Just wanted to drop a note and say hello to everyone. Sandy, my > vasculitis is flaring up too. I upped the pred. today, but it still > takes days to clear up. Hope Valarie is doing OK today. I read your > messages and I know you are really having a hard time. You are so > positive though and that's a great way to be. Hope your flare settles > down real fast. > > Still having beautiful weather here in WA. I planted a couple pansies > this AM. Now my knees are a wreck. Can't win, but at least I can look > out the window and see the flowers when they bloom again. > > Making a new cookie bar recipe today. Almaretto chocolate chip bars. > Yumm. A friend gave me one the other day when she baked them. Sounded > better than lemon bars this week. I won't eat many, will give them to > neighbors and friends. Wish you all lived closer. Have a great weekend > all. Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 Marilyn, How much do you up your pred when the Vasculitis flares up? My rheumy wants me down to 25 mg a day. I'm at 28 now and flaring like crazy, but I hate to go back up on the Pred. Wish I could plant some flowers, we had some light snow this morning. Oh Where is spring??? I am tired of snow and cold. LOL Have fun baking today, the cookie bars sound good. Hugs, Sandy > Just wanted to drop a note and say hello to everyone. Sandy, my > vasculitis is flaring up too. I upped the pred. today, but it still > takes days to clear up. Hope Valarie is doing OK today. I read your > messages and I know you are really having a hard time. You are so > positive though and that's a great way to be. Hope your flare settles > down real fast. > > Still having beautiful weather here in WA. I planted a couple pansies > this AM. Now my knees are a wreck. Can't win, but at least I can look > out the window and see the flowers when they bloom again. > > Making a new cookie bar recipe today. Almaretto chocolate chip bars. > Yumm. A friend gave me one the other day when she baked them. Sounded > better than lemon bars this week. I won't eat many, will give them to > neighbors and friends. Wish you all lived closer. Have a great weekend > all. Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 Marilyn, How much do you up your pred when the Vasculitis flares up? My rheumy wants me down to 25 mg a day. I'm at 28 now and flaring like crazy, but I hate to go back up on the Pred. Wish I could plant some flowers, we had some light snow this morning. Oh Where is spring??? I am tired of snow and cold. LOL Have fun baking today, the cookie bars sound good. Hugs, Sandy > Just wanted to drop a note and say hello to everyone. Sandy, my > vasculitis is flaring up too. I upped the pred. today, but it still > takes days to clear up. Hope Valarie is doing OK today. I read your > messages and I know you are really having a hard time. You are so > positive though and that's a great way to be. Hope your flare settles > down real fast. > > Still having beautiful weather here in WA. I planted a couple pansies > this AM. Now my knees are a wreck. Can't win, but at least I can look > out the window and see the flowers when they bloom again. > > Making a new cookie bar recipe today. Almaretto chocolate chip bars. > Yumm. A friend gave me one the other day when she baked them. Sounded > better than lemon bars this week. I won't eat many, will give them to > neighbors and friends. Wish you all lived closer. Have a great weekend > all. Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 In a message dated 3/24/01 12:30:37 PM Pacific Standard Time, biglou5685@... writes: << Almaretto chocolate chip bars. >> And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 In a message dated 3/24/01 12:30:37 PM Pacific Standard Time, biglou5685@... writes: << Almaretto chocolate chip bars. >> And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 In a message dated 3/24/01 12:30:37 PM Pacific Standard Time, biglou5685@... writes: << Almaretto chocolate chip bars. >> And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hey, Girl. Please post the recipes for both. Thanks. Jo Re: Hi All<< Almaretto chocolate chip bars. >>And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOLDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hey, Girl. Please post the recipes for both. Thanks. Jo Re: Hi All<< Almaretto chocolate chip bars. >>And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOLDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hey, Girl. Please post the recipes for both. Thanks. Jo Re: Hi All<< Almaretto chocolate chip bars. >>And I thought you were talking about Lemon Bars Marilyn!!!!! Well, these sound even better. LOLDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Marilyn, I think you delight in tempting me with the calories (that I do NOT need), but I DO need that recipe! sounds fabulous! I'm just going to have to get stronger at resisting temptation (Like that will happen in this lifetime!). I swear I can smell them from here. Mmmmmmmmmmmm. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Marilyn, I think you delight in tempting me with the calories (that I do NOT need), but I DO need that recipe! sounds fabulous! I'm just going to have to get stronger at resisting temptation (Like that will happen in this lifetime!). I swear I can smell them from here. Mmmmmmmmmmmm. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Sandy, not just the snow (which we got too), but it is SOOOOO cold! Didn't God get the email that it is Spring??? It's like February out there! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 Hi Marilyn, I flare in my ear canals. You're right, hurts like heck. I have a bleeding sore in my left ear from a flare from last week. I get blisters when my ears are in a bad flare. Hugs, Sandy > Raining here in Washington today. Woke up with a bad ear problem > this AM. Went to my GP and he said the canal was red and looked like > there were blisters in it. Put me on tetracycline. Hope I get some > sleep tonight. The pain last night was awful. It's probably a flare > up, but this is the first time I've had it in the canal, usually it's > always on the ear. Do any of you all get this in the ear canal. The > doctor said it's especially painful because of there being so many > nerve endings. > > Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 AT LEAST IT'S RAINING! So, go outside and dance in the rain!!! JUST MAKE SERE YOUR EAR IS COVERED!!!! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, Sorry to hear you are not feeling well. I can sympathize with the vasculitis on your feet, when mine flares can't wear any shoes. Did you pick up a virus somewhere? My kids caught something last week and the symptoms were stomach pains and severe headaches. Hope you get to feeling better real soon. Hugs, Sandy > Sorry I haven't been posting. Haven't been feeling good at all this > week. Stomach problems, headaches (which I hardly ever get) and > vasculitis on both feet. See my rhumatologist next week so maybe we > can get it straightened out then > > Hope you all are feeling good. Raining here in WA this AM. > You'll be in my thoughts and prayers. Bless you all. > Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, Sorry to hear you are not feeling well. I can sympathize with the vasculitis on your feet, when mine flares can't wear any shoes. Did you pick up a virus somewhere? My kids caught something last week and the symptoms were stomach pains and severe headaches. Hope you get to feeling better real soon. Hugs, Sandy > Sorry I haven't been posting. Haven't been feeling good at all this > week. Stomach problems, headaches (which I hardly ever get) and > vasculitis on both feet. See my rhumatologist next week so maybe we > can get it straightened out then > > Hope you all are feeling good. Raining here in WA this AM. > You'll be in my thoughts and prayers. Bless you all. > Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, Sorry to hear you are not feeling well. I can sympathize with the vasculitis on your feet, when mine flares can't wear any shoes. Did you pick up a virus somewhere? My kids caught something last week and the symptoms were stomach pains and severe headaches. Hope you get to feeling better real soon. Hugs, Sandy > Sorry I haven't been posting. Haven't been feeling good at all this > week. Stomach problems, headaches (which I hardly ever get) and > vasculitis on both feet. See my rhumatologist next week so maybe we > can get it straightened out then > > Hope you all are feeling good. Raining here in WA this AM. > You'll be in my thoughts and prayers. Bless you all. > Marilyn > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, I'm so sorry that you aren't feeling well. It is raining here too. Suppose to rain through the weekend. Get some rest and take care of yourself. Know I'm thinking of you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, I'm so sorry that you aren't feeling well. It is raining here too. Suppose to rain through the weekend. Get some rest and take care of yourself. Know I'm thinking of you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Marilyn, I'm so sorry that you aren't feeling well. It is raining here too. Suppose to rain through the weekend. Get some rest and take care of yourself. Know I'm thinking of you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/18/2001 7:57:54 AM Central Daylight Time, godave@... writes: << Sorry I haven't been posting. Haven't been feeling good at all this week. Stomach problems, headaches (which I hardly ever get) and vasculitis on both feet. See my rhumatologist next week >> Marilyn, I'm sorry that your not feeling well. Gee, I guess if you have vasculitis in both legs and feet, that you are not baking, for which my waistline thanks you. You really didn't have to do this much you know, a simple " Judy stop eating! " might, just might, have worked! Please don't do this to your body on my account! I want you to get better..honestly! And in your honor, I promise not to bake until next week (I hope!). Please feel better and tell your Rheumy that someone thinks you're a special lady and he'd better make you better! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/18/2001 7:57:54 AM Central Daylight Time, godave@... writes: << Sorry I haven't been posting. Haven't been feeling good at all this week. Stomach problems, headaches (which I hardly ever get) and vasculitis on both feet. See my rhumatologist next week >> Marilyn, I'm sorry that your not feeling well. Gee, I guess if you have vasculitis in both legs and feet, that you are not baking, for which my waistline thanks you. You really didn't have to do this much you know, a simple " Judy stop eating! " might, just might, have worked! Please don't do this to your body on my account! I want you to get better..honestly! And in your honor, I promise not to bake until next week (I hope!). Please feel better and tell your Rheumy that someone thinks you're a special lady and he'd better make you better! Love, Judy Quote Link to comment Share on other sites More sharing options...
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