Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 Hello guys, this is Tina mom to Alyssa and I wanted to give an update. Well she got the g-tube 21\2 wks ago and things had gotten better then she had a reaction to the formula and they changed it to peptimen jr.(by the way does any one need any criticare? I have about 7 cases of it left. let me know.) and she is still getting sick not as bad but it is still there. she will have the button put in Nov. 3. I remember that on one the post a while back that the discussion was on SSI Alyssa has a hearing on Nov 9 and I wanted to know if any one had any idea about what to say and what not to say. thanks on that note. and does anyone have any suggestions on how to handle the fact that I have a 3 yr hooked up all the time and she can't go play? we are at 31 cc a hour and I can't let her off. I have some toys in the living room and this is just not working. She gets mad I get mad and so on. any one last thought has any of the kids had their hearing damaged from the prednisone? The ped thinks Alyssa has been and we haven't done any testing yet. one thing at a time. what can we expect? thanks REMEMBER I HAVE ALL THAT CRITICARE AND NEED SOMETHING TO DO WITH IT. Tina mom to Alyssa 3 EE, EG, and seems to be allergic to every thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 BJ's eardrum busted and that was with ear tubes in and truthfully, the doctor was amazed because she said the infection was not that bad. Dawn-KS, mommy to Dakota, 7, former 34 weeker and aka BJ, 4, former 32 weeker, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie (due December 24) [eosinophilic gastroenteritis] update on Alyssa > > > Hi Tina. > > That is interesting that your ped thinks Alyssa's hearing was damaged from > predisone. AJ's hearing was fine before(she was tested at 20 months of age) > the predisone and Neocate, but now she has a mild loss in one ear and > moderate in the other. She has been fitted with hearing aids. I never made > the connection. I will have to look up side effects of predisone again. > > Phyllis--mom to > > AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss > Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies > > > Quote Link to comment Share on other sites More sharing options...
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