Guest guest Posted November 16, 1998 Report Share Posted November 16, 1998 My mother was recently diagnosed with CJD after a rapid deterioration taking place over the last 3 -4 weeks. She is presently in a wonderful nursing home south of Boston, MA. My father authorized a feeding tube before she left the hospital for the home, and at present, this is the only way that she can receive nourishment since she is no longer able to swallow. She is 67 years old, and before the onset of CJD was a healthy woman. As of today she is bedridden, incontinent, and unable to eat or drink, or communicate. Her eyes, when open, have a dead look to them. She twitches and jerks and has been running a temperature of 100 - 102 since last Thursday. I was wondering if anyone knows if the fever is a symptom of CJD, since one of the nurses suggested that what's left of her brain may no longer be able to control body temperature. A month ago that would have sounded bizarre to me, but now nothing seems too bizarre or horrific. Also, could anyone out there tell us how much time they think my mother has to live based on their experience? Has anyone else done the feeding tube route? Thank you in advance for any help you can give. Sheryl Quote Link to comment Share on other sites More sharing options...
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