Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Kathy: I promise you that I'll call your mom from my office today. I am not sure exactly what time ... but I will try my best to call her this morning .... after 9:30 AM. I will discuss your dad's condition with her and give her my thoughts regarding his current state of CJD progression. I will also discuss with her what to expect in the days that lie ahead. Take care ... and may God bless you... I want to help in any way that I can. Dolly ========================================= In a message dated 5/14/99 8:41:30 AM Eastern Daylight Time, martink@... writes: << Subj: Re: length of CJD Date: 5/14/99 8:41:30 AM Eastern Daylight Time From: martink@... Reply-to: cjdvoice (AT) onelist (DOT) com To: cjdvoice (AT) onelist (DOT) com From: martink@... Good Morning, I received an email from my mom this morning, asking if anyone would talk to her about the length of CJD and their symptoms. Dad's symptoms began Aug 98, with Strange sensations running from the feet to the head about every 10 minutes. His behavior went from private, conservative, quiet and a worrier to open. He laughed a great deal. He would walk around in his underwear, which he would never do. He was mildly forgetful (which progressed over the next several months). On Dec 22, 98 Dad began having myoclonic seizures. The dementia was worse. We couldn't leave him alone. Today May 14, 99 Dad has very little short term memory at all. Not real good with long term memory. His gait is somewhat unsteady. He has fallen a dozen times or more. He coughs presciently, He fatigues easily. If he is out for a long period of time, he will sleep for 24 hours straight. Then there are days he doesn't sleep at all. He has only choked on Food three times. His speech is generally clear, yet other times he stumbles over his words, or talks so softly you can't hear him. He has clonus in all four extremities worse on the right side. For the most part he covers for his problems. He is having trouble reading now. Mom will ask him to read the TV guide to her. and he can't do it. He can't always remember how to perform a simple task (like starting the riding lawn mower). Mom undid the battery in the car so dad couldn't drive. He knew enough to call the car dealer to come get the car. But not enough to look under the hood and see that the battery was disconnected. Dad's symptoms seem to be slower than most that we hear of. And that is why she is interested in talking to someone who has a loved one or lost a lost one that may have lived longer than a year. I think she needs people to talk to as do I. Sorry for being so lengthy. I was just hoping you might be able to help. Kathy ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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