Guest guest Posted March 23, 1999 Report Share Posted March 23, 1999 This scares me. We gave my mother heparin (injected) for about a month or so. A doctor said, why in the world are you giving her those shots? " We then said, because another doctor told us to. We discontinued giving her these shots because 1) The doctor told us to. -and- 2) A hospice nurse said that was absurd. She said, " our patients stay in beds all day & they don't ever get blood clots! " (what do doctors know) Since my mom was bedridden at this point heparin was recommended. Needless to say, we discontinued it. Now this worries me. I'm wondering if heparin made her condition worse? Did it contribute to it? I'll never know. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 1999 Report Share Posted March 23, 1999 Hi Friends: I just came back from eating at a restauant on oceanfront. HAD MY LITTLE SILVER RIBBON ON. Sure is a great conversation piece. I was talking to the waiter about CJD and some of our latest info. and he began to share about a man who had contracted the HEPATITIS C and had severe liver damage from t. He had r4eceived a transplant and he was doing much better. Back in 1991 my husband Guy haad quadruple by-pass surgery. he ws given HEPARIN. This was not the first time. He had previously had two heart attacks and received it both times. Then in 1996 he was diagnosed with kidney failure and put on DIALYSIS in May/ In case you don't know abour DiIALYSIS, they use HEPARIN to open the path for the blood flow. The way I understood it they use it as they begin and then as he is taken off the machine. He was on 3 times a week until he died Dec.5, 1998. Also there is a requirement that all DIALYSIS patients are to take the Hepatisi vaccine. I don't remeber how often, but I do remeber that there were a series of the shots when it was given. He was also put on HEPARIN when admitted to the hospital during one of his episodes (what the doctors said reffering to the CJD symptoms which at that times they knew nothing abouy). When he ws in service...in the Korean War...he was given many many shots. Only the Lord knows just how man and WHAT was in theshots. I am beginning to wonder if HEPARIN or the HEPATITIS VACCINE could have had anything to do with how he came up with CJD? I still have not received any of his medical records. If I don't hear anything soon, I will write again. Then perhaps I can add some more PIECES to the PUZZLE/ You will never know how much I appreiate all the help and research you have done. Each " little " bit or even Terry's big bits have truly been a blessing to me. I thank you and may the Lord bless you. Betty I have printed as much as I could to save in a file that I may pass this on to some of those who are not online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 Dear , We're so sorry for your loss, and that of your friend's family. pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 Betty, I would be very interested to hear what you are able to find about whether the heparin might have been the culprit of the CJD. I receive infusions every 3 to 4 weeks thru a life port in my chest and they have to flush with heparin before and after the infusion and since my port does not work properly, my nurse also comes inbetween infusins and flushes my port. I hope you can find the answers you are looking for and maybe it will help people like. Thanks. Kaner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 Dear All- A friend of mine died at 19 y.o. due to a blood clot from staying in bed too long (recovering from an illness). > Re: Heparin > > > From: Kristi118@... > > This scares me. We gave my mother heparin (injected) for about a > month or so. > A doctor said, why in the world are you giving her those shots? " We then > said, because another doctor told us to. We discontinued giving her these > shots because > 1) The doctor told us to. -and- 2) A hospice nurse > said that was > absurd. > She said, " our patients stay in beds all day & they don't ever get blood > clots! " > (what do doctors know) Since my mom was bedridden at this point > heparin was > recommended. > Needless to say, we discontinued it. Now this worries me. I'm > wondering if > heparin > made her condition worse? Did it contribute to it? I'll never know. > e > > ------------------------------------------------------------------------ > Come check out our brand new web site! > http://www.onelist.com > Onelist: Making the Internet intimate > ------------------------------------------------------------------------ > If you have any questions, problems, concerns, etc... please > contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly > at DBC006@... or Beverly G at Bevalso@.... > Quote Link to comment Share on other sites More sharing options...
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