Re: JUDY-Multisystem involvement

October 4, 1999

Judy,

I'm certain that the EG had a big part in your heart attack. All of my

information on this states that eosinophilic infiltrates can be patchy yet

deadly. My info also says that these cells get confused & eventually become

multi-system involved. They attack any one of your major organs until system

failure. The outlook on this disease is not hopeful. But, I wonder why the

docs don't do something for us all with this condition? They don't attack

the source of the problem. The white cells that are haywire go merrily

along. It's just like cancer only-tumors don't grow-white cells munch on

organs. So, you have to wonder why some sort of chemo or some sort of white

cell distructing med wouldn't be helpful? It's better that the alternative I

think.

My heart gets very irregular each day. I have this constant jiggling all

over & now it's in my head. My heart gets irregular due to several things.

Activity, food ingestion, & also chemical imbalance. I dehydrate every day

so my electrolytes & potassium are not at normal levels. I am also

malnourished & anemic. So all of those things together make it difficult for

the heart to function 100% up to par. But, as usual, the docs aren't doing

one thing for me. I was just hospitalized for the 3rd time in 3 months for

dehydration & fever & low potassium. DUH!!!!! Like what the heck did they

think would happen when I can't eat very well without getting so terribly

ill. I was inpatient for 4 days just last week . They tried a new med & it

just didn't help at all & made things worse even. I asked my doc what would

be different when I leave & go home? He said " Nothing " I knew then that he

was feeling great sadness about this. He sat on my bed & patted my leg &

very gently & softly talked to me about my options & treatments. He just had

a kinda forlorn look in his eye. I knew then that this is much worse & I'm

gonna be toast soon. I wish you better luck than me with your condition.

Any further input that you want from me-I'm glad to offer my experiences to

you. I just wish that I had more hopeful comments regarding our condition.

Take Care U,

P.S. I don't mean to be so negative-it's just reality for me these days. I

apologize.

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