Update

[Guest guest]

Tali's scoping results came back last week and confirmed the existence of

Eeosinophils in her esophigas, stomach and duodenom. She has not been throwing

up much recently (after several months of daily) but she complains of constant

stomach pain. She often says it hurts too much to go to school but we generally

encourage her to go. Sitting around the house acheives nothing. If she is in

real pain during the day she calls and we take her home. Her diet is becoming

more restrictive than ever and very frsutrating. She generally eats clear

chicken broth for breakfast and lunch and a hambuger (no bun, pickle, etc..) and

french fries for dinner. Occasionally she'll eat a peice of steak and

occasionally brocolli or mashed potatoes.

We feel like we are at an impasse and are not sure where to go next. Our GI is

pushing prednisone to see if it can break the cycle. We have resisted this for

over a year but may succumb for lack of an alternative. He suggests 30mg for a

week and then taper for a few weeks. We are scheduled to see Dr. Sampson and I

think I want to wait on the Prednisone until we see him.

The most frustrating thing about this whole disease is that there is no answer

and seemingly very little knowledge. I generally learn more about the practical

aspects from the day to day experiences described on this list than from

anything else.

Any new thoughts etc.. are always appreciated.