Re: failure to sweet pototoes

[Guest guest]

Have you tried rice or corn?

How about white potatoes.

Clayton can have -- oats, rice, corn, potatoes, apples, pears. That is when he

eats which is almost never. He does eat a little -- but it would not sustain a

humming bird.

Have your tried any of those? Try one new food a week.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sensory integration disorder and now tremors and suspected metabolic disorder,

WHEN WILL THIS END)

[Guest guest]

We have tried rice white and brown and it didn't go and we also tried white

pototoes,carrots ,apples,chicken,fish,meat,turkey,peas , greenbeans,

wheat,eggs(thats when all her troubles began.Other things I can't think of.

Have you ever heard such a thing that your child has been looked at by

doctors numerous times in a year and a half and not once did anyone notice

that he has no tonsils. I am still waiting to hear the results of my sons

tests. I decided last night that I am going to take the kids to America and

have Dr. Sampson see them. I have an appointment May 3. I'm a little

nervous coming by myself (my husband will stay here with my oldest daughter

so she won't miss school.)but I beleive I have no choice and the kids can't

keep going on with out any food.

Shana (mom to Miriam 3, unable to tolerate any food solely living on

vivanex 2 years,Yisroel 18M, unable to tolerate anything except mothers

milk,asthma,Tehilla healthy)

----------

> From: SDidinsky@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: failure to sweet pototoes

> Date: Tuesday, January 26, 1999 4:55 AM

>

> From: SDidinsky@...

>

> Have you tried rice or corn?

>

> How about white potatoes.

>

> Clayton can have -- oats, rice, corn, potatoes, apples, pears. That is

when he

> eats which is almost never. He does eat a little -- but it would not

sustain a

> humming bird.

>

> Have your tried any of those? Try one new food a week.

>

> Love,

> Sharon

> mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole

-(nda)

> and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy,

eggs,

> wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

> sensory integration disorder and now tremors and suspected metabolic

disorder,

> WHEN WILL THIS END)

>

> ------------------------------------------------------------------------

>

[Guest guest]

Shana,

Have your kids actually been diagnosed with eosinophilic esophagitis or

eosinophilic gastroenterititis?

Actually, your kids can live long and useful lives solely on elemental

formulas. All of my kids (except Kody who is on TPN) and myself are

going on formula-only diets as soon as we see Dr. next week. If

we are unable to determine which foods caues the problems, we are ALL

getting GTubes are be done with it.

The reason I ask, is because you are the ONLY other person who has

siblings with this, if your kids have been diagnosed. Also, prednisone

clears up EE and EG temporarily and is often used to definitively

diagnose the disease. (If they respond to steroids, it rules out a few

other diseases)

For your info (and others with kids with EE), my latest EGD revealaed

ANOTHER STRICTURE. So obviously steroid treatment alone is not the

answer for me. Granted, I self-tapered a few times, but have been on it

most of the last year. Will let you know how the NEOCATE diet goes. EE

has destroyed my esophagus and I will NOT let that happen to my kids.

SJHarlow@...

http://www.c4isr.com/harlow