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Dear Voice,

Today I am schedualed to read one of my book projects at my writing

group. I tried and tried for two days to continue on my normal writing work.

Couldn't write anything of value. Totally blocked.

Finally I gave up and wrote a paper on CJD. I didn't want to write it.

I'm exhausted from delivering all the research material to the reporter and

talking with her. And the last two months spent reading research. I even gave

away all my books and documents to the reporters. But once I agreed inside

to write a paper on CJD the words began to flow faster and faster. I wrote

from my heart and all the information came back to me despite not having my

books and papers....

This afternoon I'll be reading it to ten of my writer friends. I think

God meant me to write this. I know they will all be horrified. But they are

all writers and very talented people. Perhaps God just wants them to

know.......

Love, , Oregon >>

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Dear Voice,

Today I am schedualed to read one of my book projects at my writing

group. I tried and tried for two days to continue on my normal writing work.

Couldn't write anything of value. Totally blocked.

Finally I gave up and wrote a paper on CJD. I didn't want to write it.

I'm exhausted from delivering all the research material to the reporter and

talking with her. And the last two months spent reading research. I even gave

away all my books and documents to the reporters. But once I agreed inside

to write a paper on CJD the words began to flow faster and faster. I wrote

from my heart and all the information came back to me despite not having my

books and papers....

This afternoon I'll be reading it to ten of my writer friends. I think

God meant me to write this. I know they will all be horrified. But they are

all writers and very talented people. Perhaps God just wants them to

know.......

Love, , Oregon >>

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Guest guest

Dear Voice,

Today I am schedualed to read one of my book projects at my writing

group. I tried and tried for two days to continue on my normal writing work.

Couldn't write anything of value. Totally blocked.

Finally I gave up and wrote a paper on CJD. I didn't want to write it.

I'm exhausted from delivering all the research material to the reporter and

talking with her. And the last two months spent reading research. I even gave

away all my books and documents to the reporters. But once I agreed inside

to write a paper on CJD the words began to flow faster and faster. I wrote

from my heart and all the information came back to me despite not having my

books and papers....

This afternoon I'll be reading it to ten of my writer friends. I think

God meant me to write this. I know they will all be horrified. But they are

all writers and very talented people. Perhaps God just wants them to

know.......

Love, , Oregon >>

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Guest guest

Dear :

You needed to express yourself in and with your writing.

Others need to know what cjd is and what it is to care for and watch someone

you love being destroyed, almost, hour by hour.

I hope that you will share your writing with us too.

Sincerely,

Gloria

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  • 10 months later...
Guest guest

Hi all,

I use to have good handwriting now its terrible. I can write for

short periods at a time and than I have to stop.

I get bad cramps in my hands and some days my fingers are stiff to the

point I can't hold hardly a thing and as far as numbness.....well thats

beyond the point of even mentioning. I even have tuff times on this

computer keyboard. I use to wear rings on several of my fingers and now

they are always swollen so not to often do I wear my jewelry anymore.

Cathy

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

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Guest guest

Hi all,

I use to have good handwriting now its terrible. I can write for

short periods at a time and than I have to stop.

I get bad cramps in my hands and some days my fingers are stiff to the

point I can't hold hardly a thing and as far as numbness.....well thats

beyond the point of even mentioning. I even have tuff times on this

computer keyboard. I use to wear rings on several of my fingers and now

they are always swollen so not to often do I wear my jewelry anymore.

Cathy

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

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  • 3 years later...
Guest guest

That would be awsome! Alec has just started scribbling though and Greggory wont

shutup so I have no useful advice. Let me know how this works for you.

Jacquie H

Writing

Does anyone use handwriting instead of talking, PECs, language

boards, or signing? I was just talking to ' tutor, and she is

working on that...thinking that this may be his best shot at useful

communication.

Thoughts? I'm all for anything that gets him to a place where he can

tell us things.

Raena

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