Re: Digest Number 550

[Guest guest]

Hi Penny,

My name is Jeannette and I am mom to , 6, who is fine and

, 16 weeks, who is allergic to milk and soy. At about 2 wks old

had blood in his stools, I was not breastfeeding, he was on

Isomil. They switched him to Neutramigen and he continued to have the

blood. At four weeks they referred us to a pediatric GI. They never said

anything about EOS in the samples of stool they tested, just the positive

for blood. The GI put him on Alimentum, and after two weeks on that and

still showing blood in the stools, he put him on Neocate. After 10 days on

the Neocate, his stools tested negative, first time in 7 weeks. They have

remained negative for blood. His GI is very conservative, and did not scope

him. When he turns 6 months, I am to try him on the Alimentum again, and if

no blood, we are in the clear. However, if he does show blood, then we go

back and get scoped.

After our last visit, he had me start him on fruits and yellow-orange,

vegetables. So far we are okay with them, but I have noticed a bit of an

increase in his reflux symptoms, spitting up more than before the solids.

But all in all Neocate has been a gift for us. He too was normal in his

weight gain and if it had not been for the blood they would have never

diagnosed him. His peds kept trying to tell me it was a rectal tear!!! The

only drawback to the Neocate is the cost, we pay about $32.50 per can.

J.C.

> Message: 7

> Date: Thu, 09 Mar 2000 11:07:03 -0800

>

> Subject: intro

>

> Hi,

> My name is Penny. I'm a mom to age 4, and Philip age 6.5 months.

> was born with a cleft palate. We had a terrible time feeding him,

but

> finally learned about the Haberman feeder. He had formula and breastmilk

via

> this bottle. I pumped for six months, but gave up when my " output " fell

to less

> that 4oz a day. He was fine on the formula, but developed lactose

intolerance.

> He also had a mystery food allergy for about a year which gave him hives.

He

> had surgery for the cleft at 11 months, and now is " only " allergic to cats

and

> mold.

> My baby, Philip, developed green poop at 5.5 wks of age. He was

exclusively

> breastfed. I looked it up in various baby books, but all said that it was

> normal, or didn't say anything at all. I even forgot to say something at

> Philip's 2 month checkup. After we got home that day, I noticed some

blood in

> his poop, so I called the doctor. He told me to go off milk. I did, but

after

> 2 wks, there was no improvement. So the doctor ordered stool cultures and

blood

> tests. The stool tests revealed blood (duh!) and the blood tests showed

that

> he was slightly anemic and had an eosinophils level at 13. (13 percent?)

> anyway the doctor said that it was the highest that he had seen in a child

under

> 2. He said to give it some more time. When he was three months, on my

own I

> went off soy, peanuts, fish, shellfish (never ate it anyway) and corn.

Then a

> week later I went off wheat, eggs, nuts, citrus, and tomato. For a while

I went

> off potato, but that left me with not much to eat when we are out and

about.

> After Christmas, when Philip was 4 months old, we went to see a pediatric

> gastroenterologist. Blood tests revealed that he had eosinophils at 9,

and was

> only borderline anemic. She put him on iron and did a colonoscopy the

next

> day. He has a port wine stain around his ear, so she wanted to rule out

one in

> his colon. His colon looked pretty good. There were glands that looked

> swollen, but no eosinophils. She still felt that he has eosinophilic

colitis,

> but that it is " partially treated " . I should also note that Philip has

always

> been 90% in weight, so she doesn't think he has any problems with his

small

> intestine. She also put me on pancreatic enzymes to help me digest

protein. No

> matter what I eliminate, he still seems to be the same. I do know how to

make

> it worse. Beans and chicken seem to be bad. I'm trying to eat less

protein,

> but it isn't helping much. I still see some blood in every diaper.

> The doctor's recommendation was for me to wean Philip and put him on

Neocate.

> We last saw the doctor 6 wks ago. His eosinophils were still 9, but he is

no

> longer anemic, but has low iron stores (I think that's normal for his

age.) At

> that time the doctor really really wanted me to wean him, but we were

leaving on

> a trip in mid February, so she said to do it when we returned. Well we've

been

> trying to get him to take a bottle. He doesn't have a clue and he is only

> slightly better with a sippy cup. The most that I've gotten into him is

an

> ounce. I was so thrilled to be able to finally breastfed a baby, and it

was

> going so well. The doctor thinks the only thing to do is make him go cold

> turkey and starve him into accepting the Neocate. We have also started

him on

> rice cereal, as he was showing an interest in food. This may complicate

things,

> but I would think he would be a lot worse if he were reacting to rice.

Actually

> he doesn't seem to like the rice cereal much. It's pretty bad.

>

> -Penny

>

>

>

[Guest guest]

Wow Sharon,

I am newly post op so I can't give any advise but I just had to say CONGRATS

on your tremendous wt loss success!!!!!!!!!!!!!

~ in Atlanta

Lap RNy 1/30/03

Dr Daly

minus 40 lbs / 1st plateau

In a message dated 3/25/2003 10:08:34 PM Eastern Standard Time,

OSSG-Protein writes:

> Message: 11

> Date: Tue, 25 Mar 2003 19:27:29 -0000

>

> Subject: Hi - Need Advise

>

> Hi everybody !! I haven't posted in a while, but need some advise.

>

> I am 10 1/2 months post op and down 135 pounds. Down from a 26/28 to

> a size 12 (still can't believe that !!). I only have about 15-20

> more pounds that I would like to lose. I have not lost anything in 7

> or 8 weeks now. I Know that I am so far ahead of the game and really

> almost at goal well before my 1st year checkup. Any suggestions or

> ideas how to re-start my weight loss? Did anyone else go through

> months of no loss and then just losing again?

>

> Sharon ville, Florida

> OPEN RNY 05/13/02

> Dr. Thoburn Gainesville, Florida

> 5'9 " 310/175

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Every time you meet a situation, though you think at the moment it is an

impossibility and you go through the tortures of the damned, once you have

met it and lived through it, you find that forever after you are freer than

you were before.

~Eleanor Roosevelt

[Guest guest]

Wow Sharon,

I am newly post op so I can't give any advise but I just had to say CONGRATS

on your tremendous wt loss success!!!!!!!!!!!!!

~ in Atlanta

Lap RNy 1/30/03

Dr Daly

minus 40 lbs / 1st plateau

In a message dated 3/25/2003 10:08:34 PM Eastern Standard Time,

OSSG-Protein writes:

> Message: 11

> Date: Tue, 25 Mar 2003 19:27:29 -0000

>

> Subject: Hi - Need Advise

>

> Hi everybody !! I haven't posted in a while, but need some advise.

>

> I am 10 1/2 months post op and down 135 pounds. Down from a 26/28 to

> a size 12 (still can't believe that !!). I only have about 15-20

> more pounds that I would like to lose. I have not lost anything in 7

> or 8 weeks now. I Know that I am so far ahead of the game and really

> almost at goal well before my 1st year checkup. Any suggestions or

> ideas how to re-start my weight loss? Did anyone else go through

> months of no loss and then just losing again?

>

> Sharon ville, Florida

> OPEN RNY 05/13/02

> Dr. Thoburn Gainesville, Florida

> 5'9 " 310/175

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Every time you meet a situation, though you think at the moment it is an

impossibility and you go through the tortures of the damned, once you have

met it and lived through it, you find that forever after you are freer than

you were before.

~Eleanor Roosevelt