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Donna,

That is awful! I sure hope they listen to your doctor. This disease may be

rare, but there is a lot of documentation to prove it exists. They will

have to realize that it is real. For them to say they have never heard of

it indicates to me that they do not have Medical people in their

administration.

What company? What State? I will be thinking about you and wishing for

them to come to their senses.

Judy

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