Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 The Quilt, Ribbon and Mad Cow USA book distribution are excellent undertakings and will benefit CJD awareness. You could form a Quilt " committee " and a Ribbon " committee " , discuss the details privately and once a week send an email through the group informing every one of the progress. Almost everyone in the group have been through the CJD experience while caring for your family member or friend. When families contact us in shock, disbelief and searching for information after receiving a diagnosis of CJD, they are desperate and only interested in help with their current situation. I know time helps and after the ordeal is over they will join us for the next phase, which is awareness and education. Instead of arguing back and forth, look for a solution................Pat Quote Link to comment Share on other sites More sharing options...
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