Stress and CJD

[Guest guest]

Hi Suzanne:

I wanted to say that I am sorry that my email to the group brought back

painful feelings for you. I do understand and apologize for my email

upsetting you..

>>Reading about stress and CJD it has brought back all those

horrible, guilt-ridden feelings again. This is not a good day for me....

Suzanne<<

My email was meant to jog member's minds so that hopefully we can offer some

common thread to the preliminary factors that may precede the onset of CJD.

Thank you for your continuing contributions and interest in our CJD cause.

Thoughtfully,

Dolly

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Subj: Stress and CJD

Date: 3/25/99 10:01:18 AM Eastern Standard Time

From: fgd222@... (fgd222)

Reply-to: cjdvoice (AT) onelist (DOT) com

To: CJDVoice (AT) onelist (DOT) com

Dolly, Liz, etc...

Re: Stress and CJD.

My mother died from CJD on Dec. 10, 1998. Prior to the noticable

symptoms she displayed at the end of October she, in most part, appeared

fine. She did, over several months, mention leg pain, double vision, neck and

shoulder pain, constipation, a sour taste in her mouth and insomnia. She had

leg pain for several years, but thought it was arthritis. She was NEVER one

to complain so she kept this to herself and only mentioned it in passing. She

always kept active and hide her symptoms well.

I have always believed stress caused my mom's CJD to happen. On Oct.

13th, she came to my house. I had a near fatal asthma attack. She had to

call 911. In the ER I was paralyzed, intubated and put on a ventilator. I

was in this condition for 3 days before waking up. I spent 5 more days in

Critical Care. I returned home from the hospital on Oct. 21. She stayed with

me to help me recuperate. By the end of the month she was hiding belongings

making notes to where her things were, she was extremely confused, couldn't

drive, turn on the television or shuffle and play cards.....From that point on

it was downhill until her death.

I had a TERRIBLE time dealing with the fact that maybe the stress of my

illness caused my mother's CJD to become full blown. Doctor's at

Massachusetts General Hospital, Boston assured me my illness was NOT the

cause of my mother's CJD, but I NEVER believed them entirely.

Reading about stress and CJD it has brought back all those horrible,

guilt-ridden feelings again. This is not a good day for me....

Suzanne

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