Re: allergy or not?

[Guest guest]

Hi Everyone, This is Kathy (Luke's mom). I'm not sure how to delete

Steph's message (I think I'm supposed to,right?). I will learn how to

do that. In the meantime, it seems Luke has been throwing up more

often. So, it's the guessing game of figuring out why. He appears to

be in no discomfort before the musousy event. Last night I made him

french fries in corn oil (assuming that the problem with the Burger King

fries was the soy oil they used). Well, he ate all of them last night

and threw up afterwards. It's so strange because he ate a whole

potatoes worth of fries, yet when he threw up it was mostly mucous with

very little fries in it. I now am suspecting potatoes as being the

culprit (as you suspected after the BK incident, Steph). He did eat a

little Heinz ketchup with them, which he has never had before. I

honestly didn't dream these would bother him. His diet is so restricted

it seems. It really bothers me. Other than that he is very healthy and

not skipping a beat in his development. I logged on to the food allergy

network yesterday and got some recipes. They call for a soy free

margarine, which I have never been able to find a soy free, milk free

margarine. Some margarines have soy lecithin in them - do you think

that will bother him? I know they say it shouldn't, but that's

approaching this from an allergy viewpoint. I agree with you, Steph, it

is all very frustrating. In Lukes case, it appears he has allergies to

these foods, because when he doesn't have them, everything is normal,

but yet he has no IgE response in his system. It's so complicated and

confusing with just one child with it, how exhausted you must be of

thinking about it STeph, with you and all five of your kids having it

(right?).

Guess I'm just venting, too. Kathy (mom to Luke, 16 months)

Steph wrote:

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>

>

> Just wanted to throw back at everyone that I'm hearing more and more the

> conclusion that EE/EG is NOT an allergic disease. I'd heard the rumblings

> before, but they were more isolated. The GI and Allergy communities seem to

> be becoming polarized on the subject. I know Spencer's doc has felt this

> way all along and he never did see allergy. We are followed primarily by an

> allergist now, however. Not that it has done much good, but in my mind

> there has to be some allergic component to all of this, they just can't

> figure out where and how it fits in.

>

> What really frustrates me, is that there is no active research being done

> specifically to figure it out. All we can hope for right now is some

> discovery in another area that might help us too.

>

> I'm also growing increasingly frightened as my feeding options dwindle and

> the time keeps ticking with kody remaining TPN dependent. My father

> probably had this disease and only lived to the age of 43. I am 36. I'm

> beginning to feel a bit pressured to figure it out not only for myself but

> worst case... who would look out for my kids if I werent' here? It is

> extremely frustrating that the medical community keeps pulling back and

> forth and we're all stuck in the middle like a giant piece of taffy.

>

> Just venting -- Kody had a great birthday by the way!

>

> Steph.

>

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