Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Just wanted to throw back at everyone that I'm hearing more and more the conclusion that EE/EG is NOT an allergic disease. I'd heard the rumblings before, but they were more isolated. The GI and Allergy communities seem to be becoming polarized on the subject. I know Spencer's doc has felt this way all along and he never did see allergy. We are followed primarily by an allergist now, however. Not that it has done much good, but in my mind there has to be some allergic component to all of this, they just can't figure out where and how it fits in. What really frustrates me, is that there is no active research being done specifically to figure it out. All we can hope for right now is some discovery in another area that might help us too. I'm also growing increasingly frightened as my feeding options dwindle and the time keeps ticking with kody remaining TPN dependent. My father probably had this disease and only lived to the age of 43. I am 36. I'm beginning to feel a bit pressured to figure it out not only for myself but worst case... who would look out for my kids if I werent' here? It is extremely frustrating that the medical community keeps pulling back and forth and we're all stuck in the middle like a giant piece of taffy. Just venting -- Kody had a great birthday by the way! Steph. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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