Guest guest Posted December 17, 1998 Report Share Posted December 17, 1998 To All I have been thinking that firstly I hate the word " sporadic " ........... At one time some months ago, Kurt I think it was you that had the idea to form a questionaire with many questions, thoughts and ideas to pose to family members to try and see if there was a common link to this disease. I haven't heard talk of it since. I have a question to pose group members.......... Would it be a worthwhile project to begin????.....we know that a questionaire has been done by government agencies needless to say they will not share that information with us. I am willing to begin such a project with help from ALL the members. I think firstly we need to compile what would constitute a questionaire to cover all bases. I would not want to pry but I think and have come to the conclusion that we all want and need more answers. I would appreciate thoughts and ideas on this. Please email me privately as to not cause flood mailing on the list. email address guntah@... I would also like to add that with the Holidays closely approaching and it being such an overwhelming time for many, that my thoughts, prayers and strength are with you all. Sincerly a G. Quote Link to comment Share on other sites More sharing options...
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