Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Sharon, That pump is great. Now with 3 kids on pumps I am fighting to get ALL of them the Zevex/ SJHarlow@... http://www.c4isr.com/harlow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 In a message dated 2/16/99 5:20:30 PM Eastern Standard Time, SJHarlow@... writes: << That pump is great. Now with 3 kids on pumps I am fighting to get ALL of them the Zevex/ >> We only used it last night and I already love it - no alarms at all. BTW - how is it going on the sole Neocate diet for you and the kids? Love, Sharon mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda) and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues, sensory integration disorder and now tremors and suspected metabolic disorder, WHEN WILL THIS END) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Sharon, IT BITES< IT REALLY REALLY BITES. My 2/yo removed his NG tube 4 times yesterday (I had to re-install it -- YUK) My 6-/yo has thrown his up twice; neither can tolerate bolus feeds, we know have a zillion pumps, poles, bags,etc etc etc. I can't tolerate the taste and becuase I am still trying to work, I take the NG in and out every day. I also havent had time to really feed myself much... This is a living #$9)*@#@3$(#!!!!! THE GOOD NEWS IS... within about 4 days I could really tell a difference. My prednisone is down lower than it has been in almost a year and no symptoms. My 11/yo is tolerating 8-9 Neocate juice boxes day -- HURRAH for him!!! I hope this diet works... If so, I think I'll put DR. up for Sainthood. SJHarlow@... http://www.c4isr.com/harlow Quote Link to comment Share on other sites More sharing options...
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