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Kody update

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A reasonably peaceful day for us. I am asking for nursing care in the

a.m.'s, It is too difficult to change kid/bed, add the vanco, flush

both lines and give other meds while simultaneously getting 4 other kids

out the door to the bus. CANT DO IT.

I am also applying for respite care and the CHAMPUS coordinator is

putting us on some disability program? Anyone had any experience wiht

this.

The otehr 4 go on Neocate TONIGHT. No more food for them. If they don't

drink it, they get NG tubes andi f they don't tolerate that, GTs for all

of them.

I can't believe my life!

SJHarlow@...

http://www.c4isr.com/harlow

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