Re: New Memeber

[Guest guest]

Hi Group,

I'm new here. On May 14th '99 I was told that I have this eosinophilic

gastroenteritis thing. I have been searching for answers to my very

dehabilitating symptoms for 18 months now. And finally, some light has been

shed on my situation. I was thoroughly worked up at the MAYO in Rochester

for every thing under the sun & low & behold I have this stuff too. I also

have an underlying condition of crohne's disease which complicates things. I

have missed a ton of work & can't seem to recover from this. I was

immediately put on prednisone-the med from hell. I reacted badly & am now

having to ween myself off of it. I should be out of this downward spiral in

about 9 more days. I can't wait!!!! I have many questions & am looking for

answers & help. I do empathize with you all & your situation. Boy!!!! this

stuff is awful. I am not sure that they have found all of my problem yet

tho. I would like to know more info via web sites, 'cause knowledge is

power. I would like to know possible causes & meds & treatments & surgery

options, & also clinical trials. Please respond to this list or privately

with any info you think might be helpful in my search for resolution or just

simply living with this stuff. I am also worried about systemic involvement.

I had an indium scan at MAYO to locate my problem & was immediately touched

with a sensation in my brain. This, quite frankly, scares the heck out of

me. (That is a huge understatement). I am 39 yrs today-have a hubby of 20

yrs & 2 kids, ages 15yrs daughter & 17 yrs son. I fear for them as well, as

this could be hereditary? Am I right on that? They have alot of food &

environmental allergies & have to take benadryl before bed every nite or a

sinus infection comes on within about 24 hrs. So, you can understand my

concern. That is how my symptoms of this first come about. I had no clue

that several years later I would actually have an illness. They both tend

to cough alot, from sinus drainage, mostly after eating tho. I had over 4

weeks of tests done at MAYO, finally they found this. It has taken so long

tho. That is why I am worried about systemic involvement. My system is

quite depleated from the crohnes disease alone & my immune system is so out

of whack, I sure you get the picture. I did have a bowel resection for

obstruction in Sept '97, that is when all these allergic like symptoms began.

They have worsened greatly since then. I can't sleep anymore, due to all of

this jiggling that is going on. It's so hard to work & I'm worried about my

job, house, car, bills, etc. I would also like to know where I can find docs

that specialize in this condition. Well, I am already grateful for this

list. Just venting is a blessing.

Thanks in Advance!!!!

Take Care U,

in Iowa

(Camp878904@...)

[Guest guest]

Where in Iowa are you from? I used to live in WDM. I

know live in KC. I too have EG, but I am only 19. Good

luck with it. Its one hell of a disease. I do not

believe the whole hereditary thing although I am sure

others from the list would say differently. I am the

only one in my family to have any type of stomach

problems. We have even checked generations past. Well

take care and I hope to hear from you soon.

_________________________________________________________

[Guest guest]

,

Thanks for your post. It great to hear from this list. I live in Waterloo.

That's pretty neato that you used to live in WDM. It's interesting that you

say no to hereditary on this condition. I too am the only one in my family &

even generations past to have this. Interesting, I guess we are similar

somewhat. Looking forward to hearing from you again. & nice to meet ya!!!!!

Take Care U,

in Iowa

(Camp878904)