Re: Milk Intolerance/soy formula

[Guest guest]

There are research studies that show that reflux (spitting up) can be caused

by an undiagnosed milk allergy so I don't know why your docs are even waffling

on the cheese thing just in case this is a true milk allergy. And if it is a

true milk allergy, the odds of outgrowing in are increased if you totally

withdraw milk and all milk products from the child's diet. Most milk allergic

babies/toddlers outgrow it by the time they are three years old, and the best

chance you have of achieving this is getting rid of all milk products now and

just playing it conservatively.

If you want more info on EE or EG, this is definitely the place to be. Many

parents on this list are also grappling with milk and other food allergies and

intolerances. In addition, there are other listservs for milk allergy, NO-

MILK (just for milk allergies, and lactose intolerance, for adults and kids)

and POFAK (parents of food allergic kids) where the topic is all food

allergies in kids. You can also get more info on food allergies from the Food

Allergy Network at www.foodallergy.org

Lynda

[Guest guest]

Hi Pete!

has a definite intolerance to milk although all the test say he doesn't.

Our GI and several others say the tests are not accurate at his age. can

not have milk but does eat cheese with little or no problems.

Our GI who has been great with , doesn't have a lot of experience with the

disease either but is willing to consult with other docs who do. Maybe you

should ask about this.

Dawn, mommy to Dakota, 6 and , 3 (eosinophil gastro, reflux, asthma,

Nissen 10/96)

Dworjanyn wrote:

>

>

> First to those of you really sick, or w/sick children, my thoughts and

> prayers go out to you. Everyday when I read this I cringe for what some of

> you are going through.

>

> My questions if you can help:

>

> One: Last year we took my now twenty month old off of milk formula because

> he was gagging and coughing and when we switched him to soy he stopped.

> About five weeks ago we got the eos. gasrto. diagnosis and started the

> steriods. We have just begun the taper. W/ the Drs. o.k. we tried mixing

> him half soy half milk. He began spittin up after some bottles, so we put

> him on all soy. They say this probably makes him milk intolerant, but

> disagree on whether he can eat cheese. What should we do? Is there a

> definitive test for this or is he too young? What are the odds of

> outgrowing this?

>

> Two: I like our Drs. and think they do a good job. However, this seems to

> be a somewhat rare disease and therefore maybe a complete specialist in the

> field is needed. I don't feel that way yet, but for future refernce, is

> there someplace, or some Dr. that specializes in this, particularly

> pediatric ee.

>

> As before, thanks for any help.

>

> Good luck to all.

>

> Pete

>

> ------------------------------------------------------------------------

>

[Guest guest]

In a message dated 2/8/99, 7:37:31 PM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes:

<

>

My son has eosinophilic esophagitis. He is also allergic to milk. An

accidental exposure to yogurt caused him to have a severe allergic reaction

but exposure to whey in a baked good caused the persistent coughing, retching

and his typical symptoms of EE. We have removed all forms of dairy from his

diet.

I am suprised that the docs would ponder the cheese question at all at this

point. When was on the elimination diet, if something caused any

problem for him, it was completely removed from his diet. Up to this point he

had been very sick, it was not until we removed his triggers that his health

started to improve.

If this is an allergic reaction, your sons best chance of outgrowing it is

dependent upon removal of dairy from his diet.

Regarding testing, there are several tests used for food allergies but none of

them are considered very reliable.

Also, what area do you live in. Maybe one of us could direct you to a doctor

who is experienced with this.

Jen

( 11/7/95, eosinophilic esophagitis, food allergies, asthma)

[Guest guest]

>I am suprised that the docs would ponder the cheese question at all at this

>point. When was on the elimination diet, if something caused any

>problem for him, it was completely removed from his diet. Up to this point

he

>had been very sick, it was not until we removed his triggers that his

health

>started to improve.

Hi Jenn,

Why are you so surprised about the doctors comments? When I was diagnosed

with EG, none of my doctors linked EG directly to food. The EG specialist

said it might be a reaction to " something " , but they really didn't know what

caused the EG to flare. He said it was usually impossible to find out what

is causing the flares. And the doctor frankly said that I should expect to

be in the hospital a few times a year for treatment.

I now look back on these comments with disgust and contempt. It was just

another example of doctors who have no idea the seriousness of food

reactions. Knock on wood I have pretty much proven my (ex) doctor wrong.

Before I started my modified diet, I had a few EG episodes that were

treatable outside the hospital. Now that I am on a completely allergen-free

diet, I have confirmed 100% that my EG is triggered by foods. For me, the

known triggers are soy and corn - I have eaten those a few times by mistake

which caused EG, and put me on steroids for a short period. I also suspect

my other serious food allergies to peanuts, eggs, and milk will cause my EG

to flare.

I completely agree that removing all my food allergens was the only way to

find find relief, and to begin the healing process.

Kenny

[Guest guest]

Pete:

Where do you live and maybe we can help with a referral to a doctor.

My older son Jake had a milk allergy - protein - NO EG, which he partially

outgrew.l He is now almost 6 and can tolerate some milk products but not a

glass a milk and if he has lots of milk products he gets an upset stomach and

diahreha.

Clayton has EG and is highly allergic to milk and do not htink he will out

grow it. We had been told no milk products at all.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sensory integration disorder and now tremors and suspected metabolic disorder,

WHEN WILL THIS END)

[Guest guest]

Hi everone:

I got several responses to my milk question. Thank you very all very much.

We will be talking to our Dr. tomorrow when we get our results from the

endoscopy and will find out a little more. Let me say that I was not

completely accurate. Our Dr, at MUSC in ton, S.C. said that we

should probably get off all milk and that she would have the dietician

speak to us. Then the dietician said that she would just recommend getting

off milk only if that is the only thing that made him spit up. I am not

sure if the Dr. had the opportunity to really explain to the dietician what

our situation was, and while she was trying to talk to us our little one

was waking up from the anasthesia crying so it was hard. I will learn more.

I already have from all of you.

Thanks. Hope everyone is having a good day. Some times that is all we can

ask for. Will keep the especially sick ones in my thoughts and prayers.

Pete