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Miriam

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Miriam was reduced about 2 weeks ago to 2.5 mg every other day of prednisone

which is almost nothing and she was able to tolerate chicken,rice products, and

apple products every once in a while seh would have french fries. In the

beginning when she was reduced she started to have looser stools as time went on

she started getting alot of stomache pains (waking her up a few times in the

night) and the diareah started getting worse she is now having completly watery

stools 10 times a day. I spoke to my Gi today and he wants to up the prednisone.

My husband doesn't want to b/c when we originally agreed on the prednisone it

was only to be for 8 weeks it has been more then 3 months already and he made it

sound like we should do it for years if need be. Will being on 5 mg long term

cause side effects. Should we let her live a life on prednisone and be able to

eat chicken and rice products or do we take the chance of taking her off the

prednisone and she may have to go back to the life she had before of tube

feedings and vivanex.

If someone could give me some advise I'd greatly appreciate it

Shana ( mom to Miriam 3 1/2 EG, food allergies, YIsroel 2 ,food

allergies,asthma, Tehilla 7, ADHD,learning disabilities)

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