We're off to see the Wizard

[Guest guest]

Steph:

Good Luck. I also agree in denial. Every test that Clayton has had a KKI has

been bad news - NOT ONE NORMAL - i am at the point where I want to scream no

more tests.

Keep us posted.

Love,

Sharon

[Guest guest]

We;re leaving for Pittsburgh in the early early hours of Tues.

Continental Airlines is picking up the tab (thanks to the APHS).

They're admitting him that day with testing over the next several days.

The whole thing just scares me to death. Sometimes I think it's better

to NOT know, then you can have some hope that things will just " work

out " and that he will just " get better " . I really don't expect to get

any good news at all and I am NOT looking forward to losing my very

strong denial factor. On a really good note, Kody ate 2/3 of a popsicle

yesterday (I haven't seen that in years, if ever) and he is POOPING. So,

we must be on the straight tracks of t

the roller coaster.

AS 's law would have it, my 2/yo has had a really rough weekend.

He has a really large, nasty granuloma around his GT that fills and pops

and fills and pops, doesnt respond to Kenalog, no silver nitrate in the

house. He also has been super crabby, not tolerating feeds and has had

several large, bloody stools (not new to him, normal colonoscopies in

the past). So instead of spending tomorrow getting last minute

arrangements together, I'll be spending it taking him to the peds GI.

UGH.

Send good thoughts our way this week. It will be challenging. The

hubby is going to get quite a reality check trying to deal with the 3

GTs left behind, their formula, pumps and feeding schedules to say

nothing of 3 different bus schedules, schools, etc, etc. and a 2-yo to

boot. PLUS he will be running my office for me in my abscence HA. I'm

just hoping the house will still be standing and the kids will be alive

when I get back!

I ll try to post from CHP. My other Email address is

Steph8ch@....

[Guest guest]

Good luck to you all. we will be praying for you

Cathy