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Update on Clayton

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Well, Barry gave the GI h**l today (we do actually love our GI). And he plans

to do an endoscopy int he next 24-26 hours (probably on Wednesday - easier for

me as I have to be in depositions tomorrow afternoon). He said that he needs

to determine if it an ulcer a cut or something else. He seems to think that

it is just some irritation of the scare tissue but at this point he needs to

make sure. I think he is having some problems with the tube as he is ok

during the day but as soon as we put the meds in his tube at night he starts

to get hunched over. we put water in first. He is also uncomfortable after he

wakes up in the morning after his feeds do I wonder if there is some

irritation of the area around the g-tube site causing the problem. The GI

said that hopefully the scope will give us some answers. I am also going to

have him run a CBC to check his iron level.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen and possible latex allergy, some DD, undiagnosed neuro

issues and sensory integration disorder and now tremors. WHEN WILL THIS END)

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