kodys update

[Guest guest]

Hello everyone. Sorry we have not updated or answered any mail (I

haven't even read most of it yet)

Kody went into the hospital over a week ago to place a central line

(Broviak) and start TPN. IT was emotionally very traumatic for all of

us; the culmination of 4 years of hard work to PREVENT this and here we

are at the last resort.

The diagnoses are eos esophagitis and chronic intestinal

pseudo-obstruction with resulant malnutrition and repetitive

dehydration. We got his TPN in a 12-hour cycle and got home late last

night. Shortly after getting home, he had sudden and marked change in

behavoir, whiny, curled up, wanting to be rocked,etc, etc NOT NORMAL.

I hooked him up and he slept for 13 hours (NOT NORMAL). Now he is up,

says he is " sick " and wants his " Gtube opened " . Even without anything

p.o. he has a large volume of gastric output and some blood.

No doubt, we are headed back to the hospital and I am scared

*&*#@)-less.

Appreciate all your thoughts and prayers. Email I can check from the

hospital is stephy8ch@...

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

In a message dated 1/20/99 9:59:31 AM Eastern Standard Time,

SJHarlow@... writes:

<< No doubt, we are headed back to the hospital and I am scared

*&*#@)-less. >>

:

I am sorry for all the S**T that you and Kody are going through. I will keep

you in my prayers. Please let us know what is going on. Also please e-mail me

privately your phone number so that I can call to check in.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sensory integration disorder and now tremors and suspected metabolic disorder,

WHEN WILL THIS END)