Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 Hi Everyone: I don't want to flood our onelist with email, but after just reading Annette's email today concerning copies of Mad Cow, U.S.A., I realized that some members may have missed the original proposal sent several weeks ago to each individual member. I could not send it thru the one list because the onelist would not accommodate the label attachment. So, I wanted to send this email out again to those you may have missed this opportunity of purchasing copies of Mad Cow, U.S.A. at a great price. I just responded to Annette's email privately. Please contact either Bill Urdanick (WUrdanick@...) or myself (DBC006@...) know if you have any questions about this special offer for CJD Voice members. Thanks... Dolly ====================================================== Bill Urdanick and I would like to present members of CJD Voice with a special proposal. We are aware of the many " unknowns " about Creutzfeldt-Jakob Disease. For example, we know that many CJD cases are either mis-diagnosed or go unreported. We feel the CDC may not be maintaining accurate statistics on CJD cases. There is a definite need for mandatory state-by-state reporting of all CJD cases as well as mandatory reporting of all CJD cases in the USA. One of the primary concerns of CJD Voice has been finding other channels for creating more public/medical awareness about CJD. We know there are more cases and people out there that we have been unable to reach because not everyone has a computer and is on-line. Developing and cultivating network contact channels is essential to the growth of CJD Voice. The proposal we offer CJD Voice members is a simple and convenient way to purchase copies of Mad Cow USA, by Stauber and Sheldon Rampton. Members and friends can donate the books in memory of their loved one lost to CJD. By donating the books to local educational facilities such as libraries, schools, hospice, hospitals, medical libraries, doctors and nursing homes, we have a two-fold opportunity: 1. The book serves as a lasting memorial in honor of our loved one lost to CJD. 2. The book opens the door of opportunity for educational awareness to the public, medical facilities, teachers and children to learn about this devastating disease. This idea has tremendous validity and fills an important void. We have experienced the horrible demon called CJD. Most of us have children and grandchildren and we are deeply concerned about the risks and methods of exposure to our young. The children are our future and we must educate them about this devastating disease that could reach epidemic proportions during their lifetime. We are also concerned about an under-diagnosed disease that the public/medical communities desperately need to be educated about. Bill and I developed a convenient ordering plan, Bill presented it to Stauber and we have his consent. Prior to this proposal, members have had the inconvenience of ordering or purchasing their copies from a bookstore. For example, when I bought my copy of Mad Cow, U.S.A., the book cost me $ 26.50. Bill has offered to serve as coordinator for this plan and will pre-purchase the books. Members will have the convenience of placing their order directly with him through his email address: WUrdanick@.... He will provide a memorial inscription label complete with the donor's name, loved one's name, date of death, city and state where the loved one lived, and also our web site address. The inscription label will be placed on the inside right page of the book. We have attached a file so that everyone can see the label. You can safely and simply download the file. Members will reimburse Bill a total cost of $ 15.00, by either check or money order, which includes the cost of the book plus shipping charges. Bill will also provide the shipping envelope. When members receive their books from Bill, the books will be complete and ready for you to distribute to your local educational facilities. However, prior to book distribution, we suggest that you to take time to read Mad Cow. The book presents an interesting scenario that may be effecting us now and also our future generations. By volunteering to do this project, Bill will allow time for handling more pressing responsibilities. I'd like to thank Bill for his interest in helping CJD Voice further it's cause and for offering his time. If you have any questions, you may email Bill and myself using the CJD Voice @onelist email, or send your email directly to Bill (WUrdanick@...) or to myself (dbc006@...). Thank you and may God continue to bless, support and help us in our cause. Bill Urdanick and Dolly Quote Link to comment Share on other sites More sharing options...
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