Guest guest Posted January 23, 2000 Report Share Posted January 23, 2000 HI, I was by the GI today and we together decided to take Miriam off the steroids because we felt it was not really helping her much and if anything just hurting. My question for those who were on steroids and then went off how long did it take till you saw that the steroids were not working anymore?At what point can I tell if she is able to tolerate the food or she is going to start reacting and having symptoms. Untill now she has been on steroids 7 months with the steroids she was only able to tolerate chicken rice products and applesauce,juice, anything more then that she would start up with the stomache aches and diahrrea. I also met with the dietician today who said that Miriam is not getting enough nutritionally and if I could give her a multivitamin I always found she would start up with her symptoms. Has anyone found a vitamin that your kids were able to tolerate. They suggested me trying to get her to take 2-3 cups of vivanex a day and she will not take it at all no matter what the bribe is. She was on vivnex for 3 years so she remembers how terrible tasting it is. Does anyone have a guess if she will be able to continue tolerating these 3 foods with out the steroids or will she go back to square one. I hope to hear from someone, Shana (mom to Miriam 4 EG, Yisroel 2 1/2 EG, Tehilla 7(8 in 2 weeks)ADHD) Quote Link to comment Share on other sites More sharing options...
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