No sleep and worn out

[Guest guest]

Good evening my friends,

I spoke with my mom today. Dad has been awake for the last 48 hours. She

says he is completely wore out. He has fallen again and hurt his ribs.

although mom didn't see the fall this time either, but I think his legs

are beginning to get weak. I called the Neurologist to ask about

changing the medication around. He hasn't called me back yet. Did any of

you ever work with the medication wile waiting to hear from your

neurologist. Dr. Duntley has been so good with us, but I know that if

dad doesn't get some sleep he is going to go crazy. He is talking

completely out of his head, disorientd and confused. But still at times

he knows exactly what is happening. The seizures are bothering him so

much. Just tonight as I was talking to mom on the phone, he drop a plate

full of food, trying to move it. I think we are in for a downhill slide.

As a nurse I know what Dr.s would do to help, but I sure don't like make

decisions without talking to them first. However I did end my

converstion with my mother by telling her to increase two of his

medications tonight to see if he would sleep.

Sorry for the length of this letter, I just needed to talk a bit or sit

here and cry. And right now talking seems to feel better.

God Bless You

Kathy