Spencer Update and me....

[Guest guest]

Hi everyone,

Very glad to be home. Yes, we survived the F2 tornado that hadn't hit Utah

in at least 150 years. Spencer was so sick there at the hospital. The

first week I was constantly drawing labs and doing cultures and such and

then the day Mike flew in Spencer was admitted very, very sick all of a

sudden. Cultures from the week before were all negative. He is off of Vaco

since Wed and I hope that it killed that darn Gram Negative Staph infection

in his line cause I really don't want it to come back. He has, of course,

C-Diff. We are still treating him for this with Flagyl. Every time he

needs to poop he says that his bum, bum hurts and wants me to give him an

enema. He even say's it " enema mama " !!! I told him I am not doing

that......got to get those muscles working down there. Don't want to end up

with more problems along with everything else. His temp is around 99 deg.

Not too high and I hope it doesn't get any higher. Spencer is still

suffering from jet lag even though I try to make him go to bed early.....he

just wines and cries until it's timeout time and them wines and cries some

more. What can you do. I guess just pop in a Barney video and hope it goes

away soon. As for me I am exhausted, unlike him......I was unable to rest

in the hospital and on the plane and etc. LOL! Life as a mother.......boy

does it reap great and wonderful sleepless nights.

I am going in for surgery tomorrow. I am, to say the least, very scared.

They (the doc's) have told me that I have endometriosis from my clinical

symptoms but they want to see it for themselves. They will be removing

massive amounts of adhesions attached to about anything on my stomach, gut,

and female parts. At that point they will make a determination as to what

type of treatment I need to go on. Lupron being one of them to name just

one, which is kinda like Chemo. You have to go to the hospital about once a

month and have stuff injected into you for several hours and it makes you

turn into a total B***! All, of which the doctor told me were hell to go

through. If I decide to have a child I will probably go on fertility drugs

immediately and of course probably end up with twins or more with my luck.

(Sharon D., you can relate to that one.)

Doc want's me, Spencer and Mike to go through Genetic testing to see if I

have an X link for whatever Spencer has and make a decision as to whether to

go with therapy, try to have another baby or just have everything removed.

All are very hard and sad decisions I will have to be making.

My husbands mother is coming out for two weeks to help with Spencer. My

hubby will also be out of town on the 24, 25 and 30th of this month so it is

going to be extra hard. I should be staying in the hospital for at least 5

days. That would make my discharge on the 26th. (Doc's told me Friday

doesn't count as a day!) Ho, hum.

Today was Mike and I's 4th anniversary and of course we did nothing. Which

makes me think.....maybe I should go tell him to go rent a movie or

something and then get a little cozy. Won't want to do that for quite a

while.

Since I have been tolerant to pain killers for my chronic back problems I

will probably be knocked out at home with Demerol or Morphine if they can do

it at home. Of course I will willing give myself shot's. I remember on my

C-section with Spencer I was asking for shots about every three hours.

Could only get them every four, but had a really cool nurse the first night

and she gave me them every 3 hours. Hmmmm, is that a cool nurse or a very,

very bad nurse. LOL Cool in my eye's.....no pain no gain.

Thank you everyone that responded to the emails that Heidi so graciously

posted for me as I know that she has had her times of extra tuff trials to

deal with. Just so you know my mother, this time, refused to let me

subscribe to any list's on her computer cause last time I left without

unsubscribing.......and you know how that goes. She is only used to getting

1 or 2 emails a day. Just imagine. So, once again.....thank you Heidi for

your support and the phone calls that I never returned (you know

why.....family stuff).

I am very uncaught up on the emails so forgive me.....for any of you out

there that are having problems at this time I am praying for you. I love

this group and the support that it gives to us all.

, I am praying for you like mad.......I hope all goes good in God's

will. We will talk.....maybe a little giddy from the med's but who cares.

Makes for a very interesting conversation.

If anybody would like to give me a buzz, I would love the company, at the

hospital the number is and just ask for patient room

Allred. That will be kinda weird. Me being the patient.

Oh, and one more thing.....Mike and I have decided if we can to not move to

Cincinnati until we both can, as Mike needs to find a job there. We are

thinking around January instead of October as we had planned. Plus we will

get profit sharing and Christmas bonuses. Found out that Doctor Putnam will

not be practicing until November any........so no biggy.

OH AND SPENCER HAS GAINED UP TO THE BIG 20 LBS.! All steroid and false TPN

weight, but it is something. Now I just want to see it steadily rise. That

would be awesome.

One more thing......promise I won't ramble on any longer. Nutrishare called

me and wanted to make sure that my packet info that they gave me at the oley

conference didn't get lost in the mail because they hadn't received it yet.

I just knew that when they saw him they would ummmm, should we say, change

their minds about accepting him as a patient.

Anyway, sorry so long and thanks for those who have read through this entire

message or at least skimmed though it. I would love any impute on any

subject mentioned above.

Love and hugs to all........