Guest guest Posted March 23, 1999 Report Share Posted March 23, 1999 Well it seems we have had a bit of a relapse with Robin (21 mo - E.G.). She was doing great for a while there - actually eating solid foods and gaining weight. She is on the Neocate 1+, and avoiding all dairy, soy and eggs. Well, last Sunday night, she vomited 3 times, then again on Wednesday, then Friday was doubled over in pain with stomachache. No fever, and big red circles under her eyes. Called the G.I. doctor, and he said that she was having an attack - sort of like an asthma attack, except in the stomach. Anyway, he recommended taking her off all solids (Neocate only), going on a course of Prednisone, and then re-introducing food slowly and only the things we are sure about. Well, it is amazing how a child that we practically had to force feed will beg to eat when you don't feed her anymore! That was tough. We stuck it out for two whole days, and then finally gave in. She seems much better now. She has 2 more days on the Prednisone, but no more vomiting or dark circles under the eyes. We don't really know what triggered it. The Prednisone looks like it makes her a bit more excitable than normal. Still trying to get insurance to cover the Neocate. A few questions for the more experienced members of the group: I see a lot of abbreviations for various tubes and procedures used on the list - could anyone provide a glossary of the definitions for these things? My heart goes out to those of you who are faced with these challenges, and I am grateful for the information. Thanks. Ed Quote Link to comment Share on other sites More sharing options...
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