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Singular :(

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Well I am sad to say after a two week trial the Singular is doing nothing. BJ's

weight has actually not been too bad but his diarrhea and pain is horrible so we

are back to the Prednisone :(. I am not too happy about this and asked for

another scope since BJ hasn't been scoped since last November and I would like

to know where we are. Our GI doc said he wouldn't change his decision on how to

treat it. I am really starting to think it is time for another GI doc. I hate

to do it since Dr. Friesen has been treating BJ since he was 2 months old but I

can not continue to keep BJ on Prednisone or see him in pain when he is not on

it. Plus the doubts that the allergy doc put in our head about him diagnosing

so many children with EG and BJ being the actual only known case.

Dawn-KS(who will never catch up with her mail), mommy to Dakota, 6(7 July 16th)

and aka BJ, 3 (eosinophilic gastroenteritis, Nissen, and dealing with the

after effects of many years of steroid use, sigh!))

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